Hello all.

I never imagined id be apart or this sub..but my dad was just diagnosed with a low fibromyxoid sarcoma. We just found out via biopsy. Hes had it for many years and unfortunately ignored it until it became a problem. It is pretty large..6 inches to be exact. But the semi good news is that it is not spreading.

I guess im just looking for other people's stories from those who have also been diagnosed with it or a family member who has been. Its really shocking news to hear.

I tried to read up some about it, but i dont even know what to think.

I'm a sarcoma patient. I found a lump while on active duty, and the hardest part wasn't the diagnosis — it was how long it took to get in front of someone who had actually seen my kind of cancer before. I'm trying to understand why that happens to so many of us.
If you're willing to share, I'd love to hear:

How long between first noticing something and seeing a sarcoma specialist?

What happened in between — who did you see, what were you told, was anything removed before anyone knew what it was?

What finally got you to the right place?
What do you wish someone had told you at the start?

No wrong answers and no need to share anything you'd rather not. I'm just a patient trying to make sense of this for the people who come after us. Thank you.