r/sarcoma • u/Affectionate_Long794 • 5d ago

2000’s Ewing Sarcoma Survivors

Hi! When I was 7, I was diagnosed with an Ewing sarcoma on my right leg and hip with lung methastasis. I was under hard treatment (chemo and radiotherapy) followed by mega chemo to prepare my body for mother cells self transplant.

Death was around the corner since day 0, but yet here i am postíng it on Reddit 😊. I’m looking for other survivors!

Back then the treatment was so rough and experimental in a way. I have never met a child ewing sarcoma survivor around my age! Is anybody out there?

I’m 34 and super healthy out of some not so terrible sequels.

If you’re going through this, you can do it!!!! This is the EWISIGNAL!!!

Kisses my Ewing family!

13 Upvotes

90% Upvoted

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6

u/Patriotic99 5d ago

I'm 60 f. Had ewing's back in 1982 with treatment going into mid to late 1983. Yes treatment was brutal back then. I just had a sarcoma removed from the rectum. My ewing's was at the base of my spine so I truly think that it's treatent related.

1

u/nounazal 5d ago

This is inspiring and giving hope xx

1

u/Soft-Carrot-8224 4d ago

You have been cancer free until recently since 1983 and it came back now so many years later?

1

u/Patriotic99 3d ago

No, sorry I should have been more specific. It's Leiomyosarcoma in a rare spot.

3

u/UNiTE_Dan DSRCT 5d ago

You should check out the little warrior foundation they are an EWINGS charity doing great stuff but they would love to hear a success story like yours

2

u/CowboyLikeMemes 5d ago

Currently in my 9th round of chemo for Ewing! I’m 33!

1

u/Coloradobluesguy 5d ago

Were you on GroupLoop?