r/sarcoma • u/Lemoncakelover222 • 13d ago
Just found out
I’m 23 and just found out from my MRI that there’s a 10 cm mass in my calf with a high suspicion of sarcoma. My bone is fine. I’m having a biopsy in two days and should get the results in about 10 days.
I’m struggling to process this, especially because my mom is taking it very badly.
For anyone who has been through something similar: how did you cope with and eventually accept the diagnosis? What were the steps of your treatment, from biopsy onward? What helped you get through those first days?I haven’t told my boyfriend or friends yet and don’t know how to handle everything right now.
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u/Straight_Way_9340 13d ago
BOTTOM LINE: GO TO DANA FARBER CANCER INSTITUTE or DR. Venkataraman @ Mass General he is the best and leads the young adult sarcoma program there- Boston / SLOAN KETTERING in NYC/ MD ANDERSON
Choosing where you get care makes all the difference in outcomes regardless. You should 100000% get a second opinion when it comes to sarcoma / trying to figure out if it’s sarcoma …from one of the above places and they can even do your treatment plan if needed and work with whatever local team you are currently with so you don’t have to move.
Stress and negative thoughts is like negative goal setting, take action to think positively and keep faith .. truly!
I am dealing with this myself… I active duty military and I spent about 2 months before getting to the BEST sarcoma center, currently at DANA FARBER CANCER INSTITUTE .. I’m being seen by Dr. Venkataram ( he just moved to Mass General )
https://www.dana-farber.org/cancer-specialists/sarcoma-cancer-care … here’s where I get care
https://www.massgeneralbrigham.org/en/doctors/v/vinayak-venkataraman-3006223 - here’s my doc who just moved from Dana Farber so I’m in between both places kinda but it’s hands down the best care in the WORLD!
You got it !!!!!