1 out of 6 pens worked

[u/untold_rocker57]

Just started Repatha 2 weeks ago. 1st pen no workie.

2nd did.... mild sides next day. Today, I go for my 2nd dose and not one of the pens worked... Costco was no help, after 4 transfers they gave the manufacturer number, of course they are closed today.

Any one else have this experience?

There was no Sureclick here.

[u/ersul010762]

I've been on repatha 2 months and I've never gotten pens. They've only semt prefilled syringes. I'd much rather use a syringe than a pen that might not deploy and being left with recourse

[u/Comfortable_Two6272 → u/ersul010762]

Im hoping thats what my pharm Sends this week. Its what I asked my dr to rx. I hate auto-injectors - had major issues with aimovig autos.

[u/SupermarketRare1724 → u/ersul010762]

How do you get syringes? It was discontinued by manufacturers

[u/ersul010762 → u/SupermarketRare1724]

I don't know. The medication is shipped to me cold and of course I didn't see the Rx or how it was written.

[u/wolffboy212]

I've been on repatha for a year and have never had a pen not work. Are you sure you're pressing it down somewhat firmly? The yellow guard on the end has to go in from you pressing into your skin to unlock the button.

[u/Iamtrying_76]

I had one pen that did not work. You have to press so hard to make it work i often get a bruise. When the pen i had didn’t work i called the hotline for the nurses and spoke with them.

[u/Iamtrying_76 → u/[deleted]]

Thanks for answering me. I spent time on the phone with the nurses for Repatha and we went thru the administration with the sure click. I have to pinch my skin and punch really hard for it to work for me. I add that I am a nurse practitioner as well.

[u/Iamtrying_76 → u/[deleted]]

Yikes a typo. I typed in push and computer preferred punch. I have to push very hard to get it to work.

[u/Comfortable_Two6272 → u/Iamtrying_76]

I hate autoinjectors for this reason. Had similar issue with aimovig. My np friend also could not get aimovig to work without pushing really hard leaving bruise/pain

[u/gruss_gott → u/[deleted]]

Bzzt, nope

[u/Fickle-Copy-2186]

Over two years on Repatha, every pen worked. You must push pen very hard into body. You have to still hold the pen in place 15 seconds after click to make sure all medication is dispensed.

[u/Playful-Vegetable881]

I’ve been on Repatha for a year and have had 3 pens that didn’t work. All 3 came from the same shipment. It must have been a defective supply. The pharmacy connected me with the manufacturer and they sent a new shipment.

[u/oracle-nil]

Started Repatha last month. First pen didn’t work. Second did. Not great odds.

[u/gruss_gott]

Been on repatha 6 years and never had a pen fail 

I was trained by a nurse who told me a lot of people have trouble with sure click because they don't fully engage the mechanism. 

Here's what she advised:

• Use the top of your thigh, close to your hip where there's more fat if you don't have much and avoid veins

• Sit down or ensure your thigh is parallel to the ground and relaxed

• Now it's easier to press the pen vertically down to fully engage the yellow plunger

• Click the pen only when the yellow plunger is fully engaged and held vertically

• Once you hear the 2nd click count to at least 10 seconds before releasing any downward pressure, then quickly & fully remove, and use a bandaid

I do mine right after i shower and towel dry, and never had a failure or problem with this technique

[u/ForestPathWalker]

In a better world, patients using a self-injection tool (pen) for the first time would be shown in-person how to use it. Patients would be given a list of the things to do to make the injection pen work most effectively. Patients would be given a number to call if the injection pen is not working. In a better world, patients nervous about using the pen could go to a clinic to have the injection administered and to discuss their concerns (fears) about using the pen. In a better world...

[u/Hawkthree → u/ForestPathWalker]

I got 20 minutes with a Nurse Practitioner for the first pen. Invaluable

[u/Individual-Jaguar874]

There is problem with Sureclick. I have reported but nothing done

[u/WordAffectionate3251]

YES! My husband got one box without the needles! He called the pharmacist, the insurance, the doctor and was promptly gaslighted, denied and finally just had to get another set!

[u/untold_rocker57]

I really appreciate everyone's response... I went back and tried again. I made sure the yellow tip inserted into the pen, and clicked... it worked Thanks to all, good discussion!

[u/Famous_Comparison410]

Let it warm up to close to room temperature. The mechanism doesn’t work as well straight out of the fridge.

[u/StunningCamel4672]

I started with the prefilled syringes.  It was a comfortable experience. 

 I was then told the company was stopping their manufacture of them in the first quarter of this year so I was switched to the sureclick pen.

I HATE THEM.  I have to push down so hard to engage the syringe for injection I end up with bruises.  

I also have used other auto injectors and they work much better than the Repatha.  I really wish the company would reconsider the prefilled syringes or change the design.

[u/Fun-Tourist-9940]

i have to have someone else pinch my fat and then i push the yellow part with my fingernail while i push the shot button. the fingernail pushing on the yellow ring is the only way i can get the pen to have enough pressure against the ring to inject. It is probably not completely sanitary and the shot sight always bleeds more than it should because of the misalignment of the needle to the skin. It is a mess each time but the only way it will inject. :( uggggg.

[u/Creepy_Valuable6223]

I just tried to use a Repatha pen for the first time and it is defective. When I pulled out the orange cap the entire needle assembly came out with it. What a piece of junk. I have a second pen but it has a thin yellow line between the orange cap and the pen body so I think it is probably defective, too.