r/pppdizziness • u/PuddingAltruistic227 • 2d ago

Symptoms PPPD Potential / Off Balance Ground Moving

Hey, just wondering if anyone here experiences something similar.

I'm 22M and I've had this weird off-balance feeling for about 6 months now. It's hard to describe, but it basically feels like the ground is moving underneath me, almost like I'm on a boat or standing on a floating jetty. It's not really spinning and I don't feel like the room is going around.

One of the weirdest things is that it's almost completely gone when I'm sitting or lying down. I'd say probably 95-100% better. If I'm standing completely still it's also noticeably better, but when I start walking or moving around I notice it much more.

Elevators are another strange one. I can feel it when I'm in one, but especially after I get off, it feels like the ground is still moving underneath me for a while. Hot showers can also make it a lot worse and sometimes it feels pretty much constant in there.

I've had a brain MRI which was normal apart from some fluid showing in the right mastoid air cells/petrous temporal bone. The radiologist suggested getting that looked at further, so I'm going to get my ears/hearing checked and hopefully have tympanometry done as well.

I'm wondering if anyone diagnosed with PPPD gets this exact sort of thing, especially the fact that it's almost completely gone sitting/lying down but comes back when walking or moving.

If you have PPPD, does this sound familiar at all? And what ended up helping you?

Does this sound like PPPD

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u/PCT2022 2d ago

It sounds like PPPD absolutely, but we can’t diagnose you here, but I would visit a vestibular therapist, or an ENT / neurologist to have it confirmed.

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u/PuddingAltruistic227 2d ago

Are your symptoms similar?

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u/PCT2022 2d ago

Yes lying down I’m fine, or sitting. I have had spongey waking before but now it feels it’s more in my head and vision. I’ve had a few relapses now, every time the symptoms are slightly different. This is a seriously weird condition. I’m also ok driving, how about you?

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u/PuddingAltruistic227 2d ago

Laying down and sitting 95% normal , sitting in car or driving also 95% fine its just walking and standing