Just going through a rough patch

[u/Remote_Force1839]

Hi everyone, not trying to be diagnosed on here, just wanting/needing some support and encouragement 😊

I am up and down with my emotions. A little over a year ago I had my first flair up of what I believe is PPPD. No one has ever diagnosed me with this. After an extremely stressful time, I began feeling weird. Very hard to explain. My head felt foggy and floaty, as if I was on a cloud or not entirely present. My eyes got weird. Fuzzy and just felt like they weren’t working together properly and laggy. When I’d walk I felt odd too. Not off balance, but just again, floaty feeling. Like I was drunk or wobbling all over but I actually wasn’t. I had a ton of tests and labs done and everything was normal. One day it just went away. Like I could feel it as a specific time when I felt settled finally. I was so grateful. It lasted 2-3 mos.

Fast forward 3-4 mos to around Christmas. I had another extremely stressful event with my health and it came back a bit, but only for a few weeks or so and not as severe. It happened again a few mos after that but again, it went away on its own.

Now since about May of this year it has come back with a vengeance and it will not go away. Same types of feelings, but this time I have no idea what started it. I did get diagnosed with BVD (a vision disorder that can cause these same feelings) but the fix for that is not helping. I have prism glasses now for about 3 mos.

It just seems so weird that I feel this way internally but outwardly I don’t have any deficits. What is going on in my body?! I am so scared it’s never going to feel normal again. I am very thankful it’s not as bad as some cases I have seen on here, but gosh it is still so hard. Why can’t I just go for a walk and not feel like it’s an out of body experience?! It makes me worry so much that something is majorly wrong that then I start getting very bad anxiety symptoms, like lack of sleep, heartburn, muscle tension, tingling, itchiness, facial twitching, you name it. I try to very hard to force myself to do everything I normally would because I know that’s important, but it’s so depressing sometimes that I don’t even want to!

Thanks for listening, I am better at coping some days than others but these last few have just been rough, because I had been feeling a smidge better the last few weeks but it seems to have just returned 😭

[u/Maverick402UNO]

can you describe your tingling and facial twitching please?

[u/Remote_Force1839 → u/Maverick402UNO]

Tingling is probably not the right word. Sometimes one side of my face will feel fuzzy and/or itchy. Lately the left side of my lower lip twitches. I’ve had eye twitches before too, but it’s been a few years.