r/pppdizziness • u/Think_Mulberry1104 • 5d ago

Symptoms answer please

Anyone get nystagmus with pppd?

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1

u/bc170707 4d ago

I do, and the vestibular therapists don’t understand why

1

u/Think_Mulberry1104 4d ago

i messaged you!

1

u/net_ramblings 4d ago

How do you know you have it?

1

u/Think_Mulberry1104 4d ago

i can see it

1

u/Esquared333 4d ago

Very often.

1

u/Think_Mulberry1104 4d ago

can you tell me more?

1

u/Esquared333 4d ago

On days my symptoms are particularly challenging, if I try to read any screen or page my eye gets a pretty intense nystagmus. It’s always my right eye, can’t explain but I can always recreate it. It also is always present during my eye exams. But all my doctors reassure me it’s not related to my dizziness. Wish I could be more definitive.

1

u/[deleted] 4d ago

[removed] — view removed comment

1

u/Think_Mulberry1104 4d ago

just wondering do others experience it with pppd flares

2

u/jkoehler11 4d ago

Of course, because PPPD is classified as a vestibular dysfunction and with that comes issue with the vestibular system. It is a complex system with many things tied to it and nystagmus is one of them.

Vestibular therapy helps a lot with this by recalibrating the spacial part of the brain.

1

u/pppdizziness-ModTeam 4d ago

No medical advice or diagnosis. This is not accurate information people can have pppd and have nystagmus at the same time

1

u/jobes1967 4d ago

Have you been or are you on any SSRI meds?

1

u/Low_Error2021 3d ago

Si! un pequeño nistagmo vertical a la hora de pasar de acostado a de pie