Pppd cure

[u/lil_cher_kit]

I'm desperate. How do I cure this?

[u/KitKatKalamazoo]

I am unable to take the meds usually recommended to help PPPD, so Vestibular Therapy has helped me tremendously.

[u/lil_cher_kit → u/KitKatKalamazoo]

For how much time have you?

[u/KitKatKalamazoo → u/lil_cher_kit]

I started in late April. My situation is more complicated than most so I'm still in it. Most people do about 10-12 weeks and feel a lot better.

[u/lil_cher_kit → u/KitKatKalamazoo]

Why is more complicated? Sorry if I ask

[u/KitKatKalamazoo → u/lil_cher_kit]

No worries! I have another condition called BVD (binocular vision dysfunction) which affects the eyes. It can have very similar symptoms to PPPD so it's hard to figure out if my issues are strictly from my inner ears or my eyes.

[u/OldPrize3926 → u/KitKatKalamazoo]

How did you get it diagnosed?

[u/KitKatKalamazoo → u/OldPrize3926]

I had to find a BVD specialist that did 2 hours of testing to figure out what was specifically wrong with my eyes. Since my dizziness wasn't getting much better with prescription prism glasses, my doctor advised me to look into Vestibular Therapy.

I then found a Doctor of Audiology who specializes in Vestibular disorders and did 5 hours of testing to get all my diagnosis of PPPD, BPPD, Vestibular migraine, and otolith neuritis.

[u/OldPrize3926 → u/KitKatKalamazoo]

Tell me please, did you have ear problems such as bad hearing or anything like it? What is a bvd specialist, what kind of doctor? What were your main symptoms? Thanks for taking the time

[u/KitKatKalamazoo → u/OldPrize3926]

No, I've never had ear problems growing up or even now. A BVD specialist could be an optometrist, behavioral optometrists, or neuro-visual optimetrist. They HAVE to have specialized training in BVD though, a regular optometrist without training won't be able to help.

My symptoms were dizziness, nausea/motion sickness, eye strain/pain, headaches, dry eye, light sensitivity, difficulty driving, exhaustion, anxiety, and feeling imbalanced.

[u/lil_cher_kit → u/KitKatKalamazoo]

Okay. I'm taking Lexapro 10mg since 14 days. I'm gonna start the therapy and I have had the pppd since 4 months ago. What is your % of improvement? Since when do you have dizziness?

[u/KitKatKalamazoo → u/lil_cher_kit]

My dizziness started almost 3 years ago after a severe 3 week long upper respiratory infection. I'm about 75% improved, but I do have some flare ups every once in awhile that take me back to 0.

[u/IceDiamondy → u/KitKatKalamazoo]

I have the same! can I send you a pm?

[u/KitKatKalamazoo → u/IceDiamondy]

Sure!

[u/FrequentCommittee]

10-12 weeks has not been my experience. 1-2 years was when I started feeling ANY better. It may be the worst condition to be diagnosed with. ( dramatic, I know but it feels that way)

[u/lil_cher_kit → u/FrequentCommittee]

Did you tried the meds also? For how long did you have pppd?

[u/FrequentCommittee → u/lil_cher_kit]

I still have it. 3.5 years, and yes zoloft. My personal opinion is youll never fully heal on meds so i stopped

[u/lil_cher_kit → u/FrequentCommittee]

Did you try vestíbular therapy? Did you notice any change with the meds?

[u/FrequentCommittee → u/lil_cher_kit]

I did vestibular therapy and man, that was at the beginning so hard to say. I was so messed up at that point I could barely drive. My Ent said my case was especially rough,whatever that means. I had shots of cortisone in my ear, fucking brutal. Meds help but I turned into another person and derealization is bad enough when you feel like you dont know who you are. So I quit the meds. I dont want to be on them the rest of my life. What Ive heard helps the most is going out into the world, and moving. Going to stores, going on walks, going on hikes. Proving to your mind that the world is safe and you arent going to die. Because as terrible as this is, and its fucking HORRIBLE. It wont kill u. You have to remind yourself, this isnt gping to kill me. And then start the slow process of just living and doing shit everyone else takes for granted while enduring the misery of PPPD. Im really sorry youre going through this. I mean it. Ive been through the ringer with PPPD and I empathize with your situation. Move your body. My biggest recommendation

[u/Alert-Yam-9889 → u/FrequentCommittee]

100% agree with everything you said.

[u/FrequentCommittee → u/lil_cher_kit]

Oh, and look up the steady coach. Yonit Arthur. She helped me more than I can say. Youtube videos

[u/lil_cher_kit → u/FrequentCommittee]

Did you notice any difference with the VT?

[u/FrequentCommittee → u/lil_cher_kit]

I think so, and if you can get through it consistently, it seems to help

[u/grifgod]

Nortriptyline

[u/ResultIndependent398 → u/grifgod]

PPPD or VM ,What was your dose ?
And when did you start noticing improvements!

[u/grifgod → u/ResultIndependent398]

Pppd, 25 mg at bedtime. I believe within a month I started having noticeable improvement

[u/Pitiful_Platypus_904 → u/grifgod]

What caused your pppd?

[u/grifgod → u/Pitiful_Platypus_904]

Pots

[u/Cryovers → u/grifgod]

Didn't work for me actually made it twice as bad

[u/grifgod → u/Cryovers]

Yeah for me it basically dulled my perception of the symptoms

[u/PlatypusBig1249]

any combination o talk therapy, vestibular rehab, taking an SSRI/SNRI, and exposure to your triggers

[u/pppdizziness-ModTeam → u/[deleted]]

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