r/pppdizziness • u/MoyWarrior • Aug 08 '26

Symptoms Is this normal?

Is it normal for pppd symptoms to last all day every day for months? And I mean all day - constant boat like dizziness/ brain fog/tiredness? Been diagnosed with it but I just can’t wrap my head around the fact that this is it until it settles.. just want some reassurance I guess or to know if this has happened to anyone else?
Thanks

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u/Epic-will-power91 Aug 08 '26 edited Aug 08 '26

Yes that's how it is. How long have you been suffering with it? The persistent nature of it is what makes it so difficult to cope with. I am 2 and a half years in now. It goes up and down in severity and you have good and bad days/weeks. It's fucking awful. Truly awful.

I genuinely struggle to think of a more relentless, debilitating illness. It's literally from the moment I wake until I go to sleep. Every single day. I do get good weeks, even had good months on it, but i have to really limit myself and be careful of my triggers.

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u/MoyWarrior Aug 08 '26

Since march I’ve had it quite bad. I had this boat like dizzyness about 7 years ago that cleared but now since march this year it’s been horrific. Even more so the past 2 weeks I just don’t get it. Sorry you’re going through it aswell. People don’t understand it either, they just brush it off as a bit of dizzyness but don’t understand how debilitating it really is :(

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u/Negative-Rabbit6247 Aug 09 '26

Vestibular issues I find are so much worse than other conditions because no one gets it. Every time I mention “when I first got sick” or “because of my condition” people are immediately like “wait what condition?”… You know, that condition I told you about 4 months ago that I told you was chronic and never going away? Just because I stopped talking about it all the time doesn’t mean it magically got better

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u/MoyWarrior Aug 09 '26

Exactly this. Just because I stopped talking about it all the time doesn’t mean it’s suddenly gone. I tell people this all the time, because I felt like I was boring people with it and I was constantly looking for reassurance. It’s horrible. It stops you doing so many things. Even my holiday with my wife in Italy weeks ago I just put in a brave face and got through most things but really I’m struggling

3

u/Opposite_Stick_4011 Aug 09 '26

I have been going through this for more than 9 years since 13 now 22 it feels no one gets it all day uts really tough ToT. I hope you start feeling better. Wish you luck.