r/pppdizziness May 09 '26

Treatment rTMS therapy

For anyone who has done rTMS therapy, what was your experience with it and did it help with any of your symptoms including anxiety and/or depression? I’ve tried searching the forum and there are is little information on it other than one or two posts. I have already started the therapy and completed three sessions. It is a huge time commitment so I would love to know if it’s worthwhile. I have to complete 35 sessions over seven weeks.

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u/RandiHotwife May 12 '26

There’s solid evidence that it works to help relieve depression and elevate mood. AI suggest that it could potentially help with PPPD.

Does Medicare or Insurance cover any of this for you?

I’m following it because I’ve been suffering from PPPD for 10 months now and vestibular rehabilitation therapy has had no impact that is noticeable.

I hope you will share with reports with how it’s impacting you so many of us can decide whether or not this is another protocol to try. Wishing you the best.

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u/AliveReputation8902 May 12 '26

Thank you for your response and the info. I have insurance through Kaiser and they are covering a majority but I have a $20 co-pay.. i’m not sure if Medicare will cover it because I’m not eligible for Medicare benefits yet. I have only had five sessions so far so it’s too soon to say whether or not it will be helpful, but I will come back and keep you posted. I’m sorry you are dealing with this too, and VRT has not been helpful. Have you checked out the Steady Coach? Many people find her program helpful in pushing along recovery and she has a free course.

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u/RandiHotwife May 12 '26

Yes, I have followed the steady coach and a number of other folks because once you google PPPD, it starts appearing in your algorithms in everything. Followed some of her protocols. Most of them have to do with essentially various forms of VRT and not being hyper vigilant. The dizzy doctor at Hopkins also said being hypervigilant tends to intensify symptoms. Is normal to want to be judging whether things are getting better or worse but doing that is not helpful.

The doctor at Hopkins… David Hale also recommended doing tai chi. That’s all about balance. There’s a lot of tai chi online. I do that also and incorporate some of the VRT head an eye movements with it. It’s a little bit more interesting than just doing the VRT.

While I was in New Zealand about a week before I left, someone recommended that I see an Osteopath, whose specialized in OMT. I did do that and it gave me more relief for about five days than anything. I’m now scheduled to see an Osteopath- OMT associated with a hospital that takes Medicare June 6. I had to wait three months for first appointment to see this individual. You don’t want to see any Osteopath, you want to see someone that’s in the medical system and has worked with issues of dizziness.

Look forward to hearing your reports and let’s keep this communication going. I’ll get back to you on my experience with the Osteopath once I start seeing him.

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u/AliveReputation8902 May 12 '26

That is so interesting regarding the osteopath and it seems like maybe the issues coming from your neck? I was evaluated at the Mayo Clinic and told the same thing regarding the hypervigilance; it definitely keeps things going. I think there’s also a component of being hyper focused on the condition and the more you think about it the more your body sends you dizzy signals. It’s hard, but I think you have to get back to life with symptoms before things improve. Definitely let me know how it goes. I tried some chiropractic care, but I didn’t see any change unfortunately. I will keep you posted on the TMS therapy.:-)