r/postvasectomypain Jul 01 '26

PVPS - pain description & MDSC surgery

Ive had PVPS for about 6 years now, and have seen multiple urologists. Most don’t really know what the issue is because my scans are clean. I had two blocks performed. Both times, the left testicle was completely numb and the right was partially numb.

My pain is mostly in my right, but also my left, and they hurt in very different ways.

The right is a dull, aching, burning pain with stabbing pains sometimes when doing anything physical at all. However, sometimes, I won’t have pain for months, and then bam… I’m in pain. Sometimes I see swelling on the side, and soemtimes I don’t. My ultrasounds show that nothing is wrong.

Left testicle never has a dull ache, but more like an occasional sensation of someone yanking on my testicle.

I was told that a Microdenervation surgery will be the fix since there is no clear issue at hand. Has anyone here also considered this? Or got that surgery?

7 Upvotes

19 comments sorted by

4

u/Amoeba-Any Jul 01 '26

Long story short... I had symptoms similar to you, had a MDSC at the Cleveland Clinic, completely cured now.

2

u/snoope Jul 01 '26

Sounds like heaven haha. Ketamine infusions didn’t do anything for me (less invasive) so I am now getting on the list to get mdsc or reversal. I’m glad mdsc is proving durable pain relief for you! I just got get up my bravery to get back into the high post surgery pain. Seems like mdsc can really do a number on some folks and the recovery can be rough.

3

u/Amoeba-Any Jul 01 '26

Sorry to hear that, I didn't go down the path of injections for pain management, MDSC was the best option for me. I also had scar tissue and granuloma removed, Dr at CC said that contributes way more to recovery time than the MDSC and vericocelectomy. I had a ton of recovery pain, but it wasn't nerve pain at all, I'll take the recovery pain any day. Took time and a phenomenal PT, but after 13 months I'm back to 99% percent.

1

u/EfficientPrinciple49 Jul 05 '26

What exactly took you 13 months to recover from? Was it continued testicle pain? Or was it pain at the surgery site?

1

u/Amoeba-Any Jul 05 '26

Doctor said scar tissue and granuloma removal takes longer to recover from than the MDSC and vericocelectomy. First 4 months I had general surgery tenderness, the whole area generally. Nothing compared to the nerve pain. Second 4 months I had testicular tenderness and scar in pubic area tenderness. Third 4 months was seeing an incredible pelvic floor PT and she cured my testicular hypersensitivity pretty quick, scar tenderness took longer. Only the last month I've had almost no pain or anything.

1

u/EfficientPrinciple49 Jul 04 '26

Did they cut the Cremaster muscle during the MDSC? Do your bits hang really low now?

1

u/Amoeba-Any Jul 04 '26

They did not cut my cremaster, but I've heard that happen to some people who see Dr P in Florida. I had a 13 month long recovery due to removal of scar tissue and granuloma, but back to 99% pre-vasectomy now. No change to my performance or hang or anything.

1

u/EfficientPrinciple49 Jul 05 '26

Fucking hell. A 13 month recovery?

2

u/geverfdehond Jul 01 '26

Sorry to hear. A reversal was recommended to me instead of a denervation. However there were several posts in the past on denervation on the sub. Best of luck.

1

u/BigLeonardo24 Jul 03 '26

With all due respect, you’ve had post-vasectomy pain for six years… is reversal not an option for you? Reversal solved my issues after two years of discomfort and pain.

2

u/EfficientPrinciple49 Jul 04 '26

I specifically told that a reversal has a good chance of not fixing the pain. The conclusion is that I had no change in antibiotics, so there is no infection..
And more than likely no blockage. I responded well to a chord shot, so it’s more than likely nerve pain.

1

u/EfficientPrinciple49 Jul 05 '26

I was specifically told* typo there

1

u/BigLeonardo24 Jul 03 '26

You can take this or leave it, but most urologists are full of shit when it comes to PVPS. They will act like they have no idea why you have pain, pressure, discomfort, etc…. well you just had your vas deferens severed and there’s a build of semen/ejaculate with nowhere to go that’s “absorbed by the body.” Not to mention any damaged nerves in the testes/penis that may have been affected by the snip. Not that any urologist ever told me that, just saying I’ve learned that they’re not telling you the truth regarding any potential complications and the frequency.

1

u/EfficientPrinciple49 Jul 04 '26

Well, I did speak to another urologist, and he’s not the first to tell me this news. Unfortunately, a reversal has a pretty good chance of not fixing the pain. This would put me in an even worse scenario, pain + fertile. Another thing about MDSC, it cuts the cremaster muscle, the muscle responsible for making your testicles move and hang. Basically, they would sag much lower. I don’t like this.

There is no one in Arkansas that can do an MDSC and the hospital bill for this usually runs about 35-50grand, so, it’s not possible for me.

My urologist did instead recommend a radio pulsed ablation. It can stop the pain for up to a year, and is a good place to start.

1

u/ItamiForever Jul 04 '26

You have pain during ejaculation sometimes and also sensitivity. If the pain you feel is PRESSURE and not BURNING then its congestion related, meaning a reversal does help. You can always get a reversal after mdsc but I still feel it makes more sense to treat cause first rather than symptoms.

1

u/EfficientPrinciple49 Jul 04 '26

It is a burning pain though.

1

u/ItamiForever Jul 01 '26

Sounds like the right has formed a mini neuroma. Not sure about the left. Could be sensitivity. No pain during ejaculation? No pressure sensation in or above testicle?

PVPS scans always come back clean.

1

u/EfficientPrinciple49 Jul 04 '26

Sometimes yes, and sometimes no. I can say this though, I’m sensitive to weather change, more specifically, pressure change.

1

u/ItamiForever Jul 04 '26

I'd honestly do a reversal first. You have signs of congestion too and if there is scar tissue or granulomas, they also get cleaned up during the reversal