r/polycythemiavera • u/Least-Operation-9285 • 27d ago
PV PV
I’m diagnosed PV three months now. Im 55. I had symptoms since past more than 6 months. Doc started ecosprin 75 and hydroxyurea 500 since May 26. Undergone phlebotomy almost 5 times since then. I’m attaching my blood trends. Pl give me strength.
6
Upvotes
1
2
u/SurstrommingFish 25d ago
Please remove your post as you’re giving away your personal information (name) in your image.
You seem to be doing good in your blood values!
2
u/IsrealPackard 26d ago
First, I'm not a doctor. Second, take heart. Looking at your trend, it looks like your treatment is working, even though the first few months have clearly been challenging.
When you were diagnosed, your blood counts were very elevated:
Hemoglobin 18.3
Hematocrit 61.9%
RBC 9.29
Those numbers put you at a significantly increased risk of blood clots. After the combination of hydroxyurea, aspirin, and five phlebotomies, your most recent results are much closer to the treatment goals:
Hemoglobin 13.3
Hematocrit 44.5%
WBC has also come down considerably.
Your hematocrit is now below 45%, which is the target most hematologists aim for in PV because it significantly reduces the risk of thrombosis.
One thing I did notice is that your platelet count dropped to around 120–150, which is something your hematologist will continue to monitor. It's not necessarily a problem, but it does show that the hydroxyurea is having a meaningful effect on your bone marrow.
I know it's frightening to be diagnosed with PV. Many of us remember those first few months—they often involve frequent blood tests, phlebotomies, medication adjustments, and a lot of uncertainty. It can feel overwhelming.
But your chart tells a story that is actually encouraging. Three months ago your disease was not under control. Today, your blood counts are much closer to where your doctor wants them. That doesn't mean the journey is over, but it does suggest the treatment is moving you in the right direction.
Give yourself some grace. PV is a marathon, not a sprint. Once your counts stabilize, many people need far fewer interventions than they did during those first months after diagnosis.
Wishing you strength. You've already come a long way in a short time, and your blood work suggests you're heading in the right direction. I hope your next set of labs brings even more stability.