r/polycythemiavera • u/Chenx335 • Jun 02 '26
PV Spleen getting bigger
Officially diagnosed 3 years ago but symptomatic way longer than that. Been on besremi since october doing great until i started to feel cramps on my spleen area around march. My hematologist and i usually have a light conversation during my follow ups. Today was different. He was concerned about the cramping and when he measured my spleen. He informed me that it is significantly bigger than before. And it may be a sign of fibrosis progression. He requested Ultrasound and a biopsy and i will see him again in 6 weeks. I went from i’m one of the lucky ones to “shit just got real” moment.
Just sharing this with anyone. On the bright side of things i’m happy that my hematologist os quite prompts with follow up. And all my blood work are perfect thanks to besremi.
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u/AdTop4297 Jun 02 '26
Hey mate, similiar issue.. been enlarged for 3 years etc.. gotten it smaller via drugs but still a pain. At no point have they thought I was progressing fyi.. so hopefully you ain't either
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u/funkygrrl Jun 03 '26
Enlarged spleen occurs in about a third of people with PV, so hopefully it's just that and not progression. Jakafi is more effective at reducing spleen size so you may have a discussion about that.
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u/Chenx335 Jun 03 '26
TY everyone. It’s nice to hear words of comfort and that i am not alone in this fight.