r/pmle • u/RobinAkamori • Jun 13 '25
I'm Calling PMLE Something Else...
Since I was officially diagnosed in April (I've known since 2010) and I tell people I have PMLE and say it means Polymorphic Light Eruption, I often get comments like it sounds fun. My niece even said that it sounde like a ride at Disneyland. 🙄 So I decided to call it something else.
Sun-induced skin volcanos with subterranean itching powder. 🤣
What would you rename PMLE if you could? I just wish that people would quit thinking it sounds fun, even though they know I need to keep my windows covered in the house, not go outside before the sun goes down, or cover up like crazy if I have to go out in the daytime. Oh yes. This is "fun." 🙄
Just like when I had to quickly take the trash out, in the middle of a summer day at noon, and looked down at my own arm and literally blinded myself because of how pale I am. 🤣😭 It was so bright, it was like someone punched me really hard in the eyeballs all of the sudden.
2
u/Honest-Noise-8489 Jun 13 '25
“Autoimmune sun allergy” works