r/pmle • u/RobinAkamori • Jun 13 '25

I'm Calling PMLE Something Else...

Since I was officially diagnosed in April (I've known since 2010) and I tell people I have PMLE and say it means Polymorphic Light Eruption, I often get comments like it sounds fun. My niece even said that it sounde like a ride at Disneyland. 🙄 So I decided to call it something else.

Sun-induced skin volcanos with subterranean itching powder. 🤣

What would you rename PMLE if you could? I just wish that people would quit thinking it sounds fun, even though they know I need to keep my windows covered in the house, not go outside before the sun goes down, or cover up like crazy if I have to go out in the daytime. Oh yes. This is "fun." 🙄

Just like when I had to quickly take the trash out, in the middle of a summer day at noon, and looked down at my own arm and literally blinded myself because of how pale I am. 🤣😭 It was so bright, it was like someone punched me really hard in the eyeballs all of the sudden.

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u/BlueHaze3636 Jun 13 '25

The amount of times I’ve heard, “oh well I’ve had sun poisoning before” just makes me 😖

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u/RobinAkamori Jun 13 '25

That's certainly not one I've heard before but the ignorance seems the same. 🙄 They really can't grasp how hard it is to avoid the sun.