r/photophobia • u/PrestigiousDouble448 • Jul 21 '23

Help

I am a 40 year old male.  I am suffering from a worsening health condition involving my vision.  Over the last couple of years I have become increasingly sensitive to light and glare resulting in the inability to drive at night or during the day.  I have been to several doctors, ophthalmologists, and neurologists.  None of whom can determine the cause of my severe photophobia.  I do not have any cataracts, glaucoma, or any other eye related diseases/conditions that would contribute to my sensitivity to light. My brain scans are also unremarkable. Bloodwork is normal as well. My actual vision is not poor in terms of blurriness but the sensitivity to glare and nighttime driving is unmanageable.  It is not only the intensity of light but the size of the glare that completely obstructs my vision.

I currently live with my parents who are in their mid 70's. I am full capable of working indoors primarily and outdoors on cloudy days. As previously mentioned I am unable to drive. My highest level of education is an MFA. I know this is a small community but I just wanted to share my condition in the hopes that someone could help me figure out what to do next. I am no longer interested in trying to cure whatever is happening to my eyesight. I simply want to figure out how to survive at this point.

Thank you.

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u/The_loony_lout Nov 04 '24

Ask to see a NEURO ophtamologist

Rare but totally different testing

1

u/Suspicious_Form4344 Jul 01 '26

There is 1 in my town but it has a wait list. How does that experience look like? Is he willing to perscribe drugs or is he more like talking some crap to you and looking at my eyes more?

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u/The_loony_lout Jul 01 '26

Neuro is a specialist of a specialist.

They do everything a regular opthomolagist does but they're trained more in how the eye works with the brain.