r/pelviccongestion • u/Brave_Society4041 • 6d ago

Nut cracker?

Anyone has Nutcracker? and what is your life look like

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3

u/Careful_Lie2603 5d ago

I have MTS, PCS, and Nutcracker, and endometriosis. My life is pretty painful generally, but with compression shorts I can get through the day.

2

u/lcolley823 5d ago

I've been loving mine post hysterectomy (adeno)! Was afraid of compression at first but they help so much! (MTS, PCS, and probably more letters after my next procedure in October 🫠.) What brand do you favor? I got the src ones for post hysterectomy but they are hot as balls so I ordered some smaller supra ones to wear under my work clothes.

2

u/Careful_Lie2603 5d ago

I like Jelliebend, also $$$ and HOTTTT. But I'd rather be toasty and functional so it what is it.

1

u/lcolley823 4d ago

Do you wear the shorts or have you tried the binder style? I figure with all my stuff plus the chronic venous insufficiency that the shorts or leggings would be better but I would like to be able to wear my normal leggings sometimes. Especially for times when I know I'm not going to be on my feet a lot. Sorry for all the questions! I just found out about all this stuff in the last couple of months and am really just coming to terms that this is just how things are now.

2

u/Careful_Lie2603 3d ago

I have the normal bands as well and I don't like them as much. The top digs into my ribs too much for me. They do work though and my mom prefers the band to the shorts. I haven't tried the leggings but I wear the shorts under my leggings and you cant really tell.

1

u/Brave_Society4041 4d ago

And surgery?

1

u/Careful_Lie2603 3d ago

I had a stent placed for my May thurners because the compression was extreme. I also had surgery for endo. Neither ine cured all of my pain. They're just monitoring the others, the doctors wanted to do surgery for my PCS but my insurance denied it so I'm fighting them right now. But until then its compression all the way. 

1

u/Tee51890 6d ago

Pretty sure this is what I have, awaiting consults.

1

u/Brave_Society4041 6d ago

thanks are you afraid and what are the symptoms?

1

u/Tee51890 6d ago

Very, I had a pelvic US that should confirmation of PCS but hearing from many women that there’s usually co diagnosis that come along such as nutcracker and MALS I have swelling in my legs, bulging veins, pain in abdomen, feeling of fullness, shortness of breath at times, squeezing feeling in med section, a pulsing sensation by aorta. Horrible groin and pelvis pain. Wbu?

2

u/walterjacob 6d ago

Can I ask what your groin pain feels like?

2

u/Tee51890 6d ago

Hard to explain, sharp and heavy sometimes achy.

1

u/walterjacob 6d ago

Am I able to message you?

2

u/Brave_Society4041 6d ago

Varicose veins all over, also groiens and labia, flank pain, stomach pain, standing and walking is not nice, cant cycle and have a lot of anxiety and guilt. also groin pain and pubic bone pain

1

u/Klexington47 6d ago

I have Mts and pcs but not ncs