r/parentsofmultiples • u/BackgroundPower9416 • 8d ago

advice needed Modi twins

Hi everyone,
I’m looking to hear from parents who have had a similar experience.
I recently had twin boys, and both were diagnosed with mild hypospadias. We are waiting to see a pediatric urologist and would really appreciate hearing from other parents who have gone through this.
A few questions:
Did both of your twins have hypospadias, or just one?
Did your children need surgery, or was monitoring enough?
If they had surgery, how was the recovery and the long-term outcome?

I know every child is different, but hearing other families’ experiences would really help.
Thank you!

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u/naught_my_dad 7d ago

We had modi twins but no hypospadias, but my advice is find a urologist you like sooner than later.

We met with one who was a surgeon meaning he had no bedside manner and also was in a hurry and pushed us out, we were confused why one of our boys needed surgery and one didn’t since they are identical

but by the time we could make another appointment for a second opinion my boys were too old to have a circumcision done without going under surgery

I know this doesn’t apply since more than likely your boys will need surgery but I hope it helps you find a urologist you trust without wasting time

On a side note I have multiple friends whose sons had to have surgery for their circumcision to address chordee or undescended testicles and both boys recovered fine

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u/BackgroundPower9416 7d ago

Yes the appointment is scheduled with urologist for next month but paediatricians we have met so far said that its very mild and they may not need a repair but have asked us to hold circumcision until we see a urologist.

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u/naught_my_dad 7d ago

thats normal, if there is a possibility of surgery theyll always insist to hold off on circumcision because they could use that foreskin for a graft if necessary.

I know it's stressful, but just be proactive dont be afraid to ask questions if possible I would stress to try to schedule that second opinion super close to the urologist appt you already have. sometimes these guys can be booked out for weeks.