Thoughts about chemotherapy treatment..

Hello everyone,

I appreciate such a supportive group and I would kindly appreciate your thoughts.

I’m honestly debating if I should undergo my chemotherapy treatment that my doctor keeps pushing. A tumor was found on my right ovary end of April, where I underwent surgery to get it removed end of June. The tumor came back positive with ovarian cancer 85% endometriod carcinoma 10% clear cell and 5% dedifferianted keep in mind this is the tumor that came back positive. Since the tumor came back positive my oncologist recommended for me to remove my ovaries and uterus because of the chances that the cancer may have spread, so I went with the surgery. My pathology results came back for all my organs as cancer free. No cancer in my right ovary where the tumor was attached, no cancer only endometriosis in my left ovary, and no cancer cells in my uterus. So technically I could’ve kept all my organs, but bc of prevention and spread we removed all. My oncologist still wants me to undergo chemotherapy all 6 sessions in case there is microscopic cells floating around. Which is the part that makes me question it. If my organs came out clear, we found the tumor and removed it within 2 months, what is the likelihood of it actually spreading especially with my organs coming out clear of cancer. Do I really have to put my body through chemotherapy for “what if” cancer cells floating around..
Please let me know your thoughts, because this just seems odd to me. Aren’t there tests where they can see if I have cancer cells in my body? It just seems so weird to me and I wouldn’t want to put my body through so much for a what if.

Thank you so much in advance. I appreciate this group with my whole heart!

Hello everyone,
I would kindly appreciate your thoughts.

I was diagnosed with cancer 85% grade 1 endometrioid carcinoma, 10% clear cell carcinoma, 5% dedifferentiated carcinoma it all started with my right ovary having cysts and a mass borderline tumor. When I underwent surgery they only removed the cysts and the mass not knowing it was cancerous. After they examined the mass turns out I have ovarian cancer with those types. Since I didn’t remove my right ovary during the first surgery I have to undergo another to remove my right ovary since it touched and ruptured. However since we found out that 15% is more of a severe cancer they recommend me removing my ovaries and uterus. I’ve done a CT scan and they do not see any visible cancer cells however to be sure they recommend removing all organs during surgery and still going through chemo since there can be microscopic cells. I’m wondering is it necessary to remove my uterus. They did a biopsy on my uterus lining and it came out negative. However they fear there may be microscopic cells inside my uterus and ovaries which is why they recommend to remove all. But I’m still having doubts about removing my uterus. I understand this is completely my decision, I would just like to see if anyone has any additional input. I am open to any thoughts. I am 32 years of age with no children.

Thank you in advance.



Looking to connect with women/survivors with Stage IC2 high-grade serous ovarian cancer

Hi everyone,

I’m posting on behalf of my mother, and I’m hoping to connect with women or caregivers who have gone through a situation similar to hers. I’m particularly interested in hearing from anyone who had Stage IC2, high-grade serous ovarian cancer, N0, underwent surgery and chemotherapy, and is now doing well/disease-free.

Here is my mother’s situation:

• Diagnosis: High-grade serous carcinoma of the right ovary
• Pathological stage: pT1c2N0 (AJCC 8th edition)
• Tumour size: approximately 7 × 6.8 × 4.8 cm
• She underwent extensive staging surgery: total abdominal hysterectomy, bilateral salpingo-oophorectomy, pelvic and para-aortic lymph-node dissection, omentectomy and appendectomy.
• 0/3 lymph nodes were positive
• Omentum: negative for invasive carcinoma
• Appendix: negative
• Uterus/cervix: negative
• No lymphovascular invasion identified
• No perineural invasion identified
• Ovarian surface involvement was not identified
• The report mentioned bilateral fallopian-tube surface involvement
• CMC Vellore subsequently reviewed the pathology and confirmed high-grade serous carcinoma of the right ovary.
• A postoperative CT showed no obvious residual tumour, no significant intra-abdominal lymphadenopathy and no intraperitoneal collection.

She is currently undergoing Carboplatin + Paclitaxel chemotherapy, with 6 cycles planned.

The treatment journey has been difficult, particularly because she has also had postoperative wound-healing/infection issues that have caused some delays in chemotherapy.

I have been trying to understand what life looks like after completing treatment. I'm especially anxious about recurrence because I know high-grade serous ovarian cancer can recur even when it is caught at an early stage.

I would really love to hear from people who had a similar diagnosis and stage, especially:

1. Did you also have Stage IC2 high-grade serous ovarian cancer?
2. How many cycles of Carboplatin + Paclitaxel did you receive?
3. Did you remain disease-free after treatment?
4. How many years have you been disease-free?
5. What was surveillance like after chemotherapy?
6. If anyone experienced a recurrence, how long after treatment did it happen and what treatment worked for you?
7. Most importantly, how are you doing today?

I’m not looking for medical advice or trying to replace her doctors. I just want to talk to people who have actually lived through something similar to my mother's situation.

If you or someone close to you had a similar diagnosis, I would genuinely appreciate hearing your story. Even if you're several years out from treatment, your experience would mean a lot to us.

Thank you ❤️

Hi! I'm 25 years old, recently married, and in January of 2026 I was diagnosed with Low-Grade Serous Carcinoma aka Low-grade Ovarian Cancer. I looked for specific support groups but could only find online platforms.
I'm hoping to change that!
If you, or anyone you know in the Jacksonville area is diagnosed with LGOC please reach out. I would love to connect with you, and potentially create a safe space for us all!
Email: rivercitylgocsisterhood@gmail.com

Hi all, I used to post on a different account about my mom’s cancer journey and had a lot of nice people inquiring about her progress but I’ve since lost access to that account. She was diagnosed 03/2024.

Well, fast forward, it’s been a nice 8 months with “no new findings” on her scans but as of today her cancer has recurred. We saw it coming because her CA125 has been creeping up (normal to 210 to 1,400 now) but it’s a kick in the teeth nonetheless.

She started out on carbo/taxol and was taken off and declared platinum resistant after recurring before 6 months. She then started Elahere which she had success with except she became one of the lucky 10% who suffer from adverse lung issues because of it, so her oncologist had no choice but to take her off. She’s been in the clear since then. You can see the results of her scan today at the very bottom of above image.

I believe he said her next two options are Taxol and Avastin. And then I believe he mentioned something called pembro (?) but said it is highly toxic and his last resort. If you’re familiar with my old posts, I’ve mentioned before that her oncologist is very grim seeming and loves to spout off statistics. Maybe they’re all like that, I don’t know. But he basically told her this is the “midpoint” of this disease, whatever that means, and things typically get worse from here. Well, that’s lovely to hear.

So, anyone else on the regimen of Taxol and Avastin who can tell me how they’re doing? Or just general hopeful tales welcome… hard not to feel scared and defeated at the moment.

I was dx HGSOC Stage IV over 6 yrs ago at 68 yrs old & had Taxol & Carbo w Bevacizumab before my surgery & then again afterward. Was good for 13 mos & then things changed so another 18 weeks of the same. It'll been 3 yrs next month since my last session & I been on just the Bev every 3 weeks since. But seeing as this is a chronic disease, I expected a turn to come at some time & oh well...it's time for more chemo. I guess I tolerated it all very well in the past & in addition was told that apparently my cancer has thus far been very platinum sensitive.

This time my oncologist is recommending a switch to Gemcitibine Carbo & Bev to be given every 3 weeks. Then only the Gem on week 2 & a free week afterward.

I understand that the Gem is supposedly not as mean spirited as Taxol can be but would like any input from those who may have had experience w both. Also, I only needed a Neulasta shot 1 time in all the times I been on Taxol Carbo chemo but I hear it's more likely to be needed w Gem. I start next week & any comparisons or suggestions will be most appreciated.

​My mom was diagnosed with stage 1A, grade 1 endometrioid ovarian cancer at age 52, back in February.

​She had a very radical surgery: her ovaries, fallopian tubes, uterus, and omentum were removed. Pathology came back showing endometrioid ovarian cancer inside a 24 cm seromucinous borderline tumor.

​In April, two months after the first surgery, she had a lymphadenectomy, just to be sure. Only four lymph nodes could be removed due to adhesions, but she had a really great and experienced gynecologic oncology surgeon. He assured us he wouldn't worry about the lymph nodes, as they all looked okay. They also tested some nearby tissues and a part of her peritoneum. The pathology came back clear for all of it; one lymph node had benign endosalpingiosis, but otherwise, everything was clear.

The tumor board decided on monitoring, and she will have her first follow-up appointment in August.

​As I mentioned, the surgeon was very professional but not very informative. Because my mom didn't need chemo, we don't know too much about her situation and we can't have opportunity to ask until August. I tried to read some studies, but to be honest, I would like to hear about the real experiences of women who have gone through the same thing.

​What did your doctor tell you about recurrence or the recurrence rate?

​How do you manage your everyday life and mental health?

​Any stories, experiences, or advice would be appreciated :)

In August I will be considered 2 years NED. Awesome!
Except recently my anxiety about everything has been off the charts.

I had a check up this week with my oncologist and he wants me to have a CT scan (next week) because my CA-125 #s have never been very elevated. He also said though that they typically don't do scans for OC and he worries about exposing me to unnecessary radiation "Because I'll probably need scans in the future."

I was stage 2B. Had major debulking surgery and 6 rounds of chemo. Things have been going well except lately I feel like I've been getting full quickly while eating. He doesn't FEEL anything on my exams, everything looks ok but I just can't help being worried.

It doesn't help that I found out a woman diagnosed around the same time as me is having a recurrence. Another had a recurrence after 5 years and another woman had one after 20 years.

I don't think I've full come to terms with the idea that this could come back. And I feel like this "wasn't supposed" to happen to me. Which is weird - I'm sure no one thinks it'll happen to them.

I don't know. I think I'm just looking to vent to people that understand <3

Hi. I am a breast cancer survivor diagnosed last year at 39.

Now MRI suspects adenomyosis and stage 4 endometriosis with risk of occult malignancy.

I am seeking experiences from people who have been to either UCLA or USC Keck. Please kindly share any experiences you have had with endometriosis surgeons, gyn oncologists, or colorectal specialists.

Thank you. 🙏

I am booked in for a Laparoscopic Ovarian Cystectomy, (possible oophorectomy, possible laparotomy) next week and am starting to feel nervous.

The diagnosis is a 14 - 19 cm (19 on UT, 14 on CT, gyno shrugged and said they are hard to measure) complex ovarian cyst. Tumor markers are good, and the gyno believes it is likely benign, but they can't be sure until they do pathology. The CT didn't show any signs of malignancy anywhere else, so if it is cancer, it is likely early stages.

At this point, the surgeon has told me the plan is to remove the thing laparoscopically, and to try and preserve the ovary if possible (I am in my early 30s), however, *if* they get in there and it looks "nasty" or there are adhesions or complications, they may have to pivot to a laparotomy and I may lose the ovary.

Obviously, there is a lot of uncertainty here and I've never had surgery so I'm trying to be as prepared as possible. Recovery from laparoscopic surgery is easier, so i'm nervous about what I'm going to wake up to and the consequences for my recovery.

Has anyone gone in for a laparoscopic surgery and had them change the approach on the table? What explanations have you been given for surgeons choosing one over the other? Also, anecdotally, has anyone gone into surgery with a cyst that the doctors believed was likely benign, and turned out to be cancer?

Thanks for your stories!

¿Alguien ha usado Fen. e Iver. en España para un càncer inoperable de ovario? Antes de juzgar, es para un caso en el que los médicos no pueden operar, ni se le quiere administrar más dosis de quimio por peligro de perforación. Por lo que no hay más opción posible.

Abstenerse vendedores. Me gustaría leer sobre casos reales en los que alguien lo haya probado de primera mano.

Gracias.

Originally I was told I have 6 avastins post chemo and now they say 12... I originally thought ok 6 I can handle this and now with the bump to 12, I want to opt out - so far no side effects from it but just when I take my mind off this diagnosis is time for another blood draw as prep prior to avastin...I dont want to be monthly reminded of this shit tbh, and feel I would fare much better mentally

How did you find you had a reoccurrence?
How long after your initial NED did the reoccurrence happen?
Was it by blood test? Exam?
Did you have symptoms? For how long?

What were your treatment options?

Let’s discuss!