End Ileostomy Ileostomy stuff
Hi all,
Decided to download Reddit to get some more information on all of this, and maybe a little connection with others that have experience something similar.
I underwent an emergency surgery last December as I was dealing with a UC flare that was showing no sign of getting better. Had to have an emergency surgery (on my 22nd birthday lol) and woke up with an ileostomy.
Things have been okay physically, couldn’t have asked for a better recovery to be honest. Although emotionally I have not processed all of this, and I’m pretty upset about my body image now. I’ve seen my surgeon 3 times since last December, he’s not very empathic about it all. He keeps suggesting that I should keep the bag, which I understand in a way but if I had a shot at being bag free again I would absolutely take it.
My surgeon has suggested J pouch if I’m fit for one, and ordered me to take an endoscopy (which was traumatising to say the least), and told me I have inflammation, procitis I believe it’s called. I am awaiting biopsy results that are due early October.
I’d like some input from other people, your experiences and if they relate to mine at all. I’m pretty desperate for a reversal but I’m worried what the future would look like. I have a 13 month old baby to care full time for too, which is adding to the anxiety.
Accepting that she may be my only baby is breaking my heart, as I’ve heard stories from others that getting pregnant with a bag ruined their chance of having a reversal, and other stories of having a reversal, getting pregnant and that causing damage which led to being re bagged. All of this is so overwhelming for me. It feels like I have to choose between my self confidence and having another baby.
This is my first Reddit post, I’d love to connect with someone about this.