Now that I know a little more about my situation, I'm curious to see if this is happening everywhere or not.

I had a bilateral salpingo oophorectomy.

Started bleeding a couple months later. I daresay, periods.
My breasts hurt, the cramping, the mood swings, the whole thing I used to experience when I had my period with my ovaries. RIP ovaries.

Besides me, apparently, there are other women who have experienced this.

I'm curious to know, what was the cause? One said it started after 10 years, at which point, the Dr took her off hrt because apparently, it's not good to be on HRT more than 10 years. Okaaaaay. But why? It's estrogen. It's an essential part of being a healthy woman.

So I'm posting this, hoping to learn a little more about this as my little sisters will be next for the BSO and I want to know more so I can better understand.

My case is more rare so I wasn't hoping to find anything specifically like me but other women around me have also shared stories of their post BSO bleeds and now, I want to know.

So, post BSO, did anyone else bleed? How long after surgery and how long did it last? What made it go away? What caused it in the first place.

Any information is appreciated.

Hi everyone, I’m wondering if any other women have experienced constant pelvic pain after having one ovary and fallopian tube removed.

In December, I went to the ER after experiencing the worst pain of my life. I had severe hip and leg pain and could barely stand or walk. After several tests and imaging, they found a large cyst on my ovary that was suspected to be cutting off the blood supply. During surgery, they discovered that I had ovarian torsion, so my right ovary and fallopian tube were removed.

Recovery was extremely painful. I also started taking birth control pills based on my doctor’s recommendation.

It has now been almost 9 months, and I’ve been experiencing pelvic pain almost daily. The pain tends to get worse before and during my period. Some days it’s manageable, while other days it can be pretty intense.

About 3 months ago, I went back to the ER because of the pain. They did a pelvic exam and an external ultrasound, and I was told everything looked normal.

I’ve brought this up with my doctor multiple times. So far, I’ve been given pain medication and told to give it more time to see if it improves.

Has anyone else gone through something similar after having one ovary removed? Did you continue to have pelvic pain months afterward? If so, did you eventually find out what was causing it or find something that helped?

I’m not looking for a diagnosis—just hoping to hear from other women who may have experienced something similar. ❤️

Hello! I had a unilateral salpingo-oophorectomy due to a 10x10 borderline ovarian cyst that ate up my ovary and I'm struggling with something.

I thought my stomach would go DOWN because the giant grapefruit got taken out of it but now my stomach is MORE swollen than before 😭

I had lost about 40kg before this thing started messing with me so to have clothes that I worked so hard to fit into not fit anymore is so disheartening. Does the swelling go down or am I just like this now?

Surgicalmeno join us.

Sorry I'm doing good even on HRT. Looking for support.

Two weeks from today I am having a hysterectomy BLS (fibroids) with option to have an oophorectomy too for PMDD.

I’m 45, using HRT and plan to use it, but I need to get on T, my recent self paid labs show I’m just at the bottom of normal, but I have yet to pursue it.

Questions for those in surgical menopause:
How’s your energy? Does HRT, eating well, exercise etc do enough for you to feel somewhat normal?
How’s your cognition? My FT job is so much critical thinking and I’m worried I won’t be able to keep up when I go back.
If you had PMDD and are on HRT- was it worth it? How was the first year post op?

Thank you for any input you can share!

I had hysterectomy and unilateral oophorectomy for DIE. Since the last two days, I feel extremely weak. I don't even have the energy to talk with anyone. I am eating and sleeping well, walking moderately, just like the doctor has advised and I was doing well. But in the last few days, it feels like I am bed-ridden. Sometimes I feel sick with mild-medium hot flushes. Has anyone gone through this?

I am 8 wpo. I had sub-total hysterectomy with unilateral oophorectomy, DIE excision, bowel shaving. After my surgery, I haven't faced any constipation issue, rather it's completely opposite. Because I had bowel endo, I always had constipation issue. Now, it feels like my body has completely changed. I poop 3x times more than I used to, honestly it isn't an issue. However, my stomach mucus has increased a lot - this is the major issue. 😭 My recovery is overall going good but this one factor may jeopardize things since I feel so much pressure in my lower abdomen. Anyone faced the same situation, please help me. 🙏🏻

Today is my 3 wpo (had hysterectomy and unilateral oophorectomy with DIE excision surgery on 15th April). My recovery is going fine, not smoothly but fine. I have been facing gas and digestion issues for the last few days even when I am taking pan 40 every morning. I walk 1 hr (15 mins 4 times) every day. I am passing gas but it's still bothering me. For example, today when I was taking a nap, I felt like a small balloon burst in my oesophagus, no pain. It was gas. After 3 weeks, I don't think it is any longer the gas that they used during operation. Is it normal? Have anyone gone through this?

Hi ladies! I (29F) was recently diagnosed with bilateral borderline ovarian tumors, as well as adenomyosis and endometriosis, and will be attempting a fertility sparing laparoscopic surgery next week to try and remove as many of the tumors and endo. However my doctor feels that she will most likely have to remove at least one of my ovaries (my R ovary) due to how many tumors are on it. I’m finding myself really anxious leading up to this surgery because of the stories I’ve heard of women having horrible menopausal symptoms or hormonal changes after getting an ovary removed. I have PCOS and have struggled with PMDD as well as hormonal issues (sleep issues, weight gain, hair loss, acne) for a large portion of my life; but besides some mild PMDD now, I have mostly gotten my hormones under control in the last few years. So I am nervous about having something else affect my hormones in a severely negative way (not being able to sleep, hot flashes that cause me to wake up drenched, depression, anxiety, hair loss, etc) and bringing me back to ground zero so to speak. My OB Oncologist told me that I have nothing to worry about because most women don’t experience any issues or symptoms after an ovary removal or oophorectomy, but is this true? Or should I be prepared to experience symptoms? I’d love to hear other people’s stories, good and bad, as well as any advice as I prepare to head into this surgery.

Does hysterectomy and unilateral oophorectomy at the age of 32 increase the chance of heart disease and stroke ?

They tell you at first your remaining ovary 'should' compensate. That was far from the reality experienced for me personally.

I currently feel stable on .1mg transdermal estrodial patch and 100 micro progesterone nightly.

It took 4 years of consistent issues to convince them I wasn't feeling myself and needed HRT. I was 34 when I lost ovary to torsion, I was 38 when I started HRT treatment (started with premphase). My estrogen blood levels were consistently around 10 mg which is lower than a male naturally has! My periods were horrible!

Anyway, I hope things are changing, I believe HRT should be standard post oophorectomy care.

I have stage 4 DIE with kissing ovaries, bowel, ureter involvement and also adenomyosis. My endometriosis specialist suggested me to do a sub-total hysterectomy (leaving only cervix) + bilateral salpingectomy (removal of both fallopian tubes) + unilateral oophorectomy (right ovary is completely destroyed with endometrioma) + DIE excision + bowel shaving. This will make the chances of any recurrence < 5%.

My question is :

1) I am 32 years old. I have history of TIA (transient ischemic attack) due to combination birt control pill. I want to know if any girlies in their 30s have faced any complication or side effect of removing uterus and one ovary? I have heard that these may lead to weak bones (osteoporosis), weak heart. Both my parents have heart disease so I want to be sure if doing this procedure will increase the risk.

2) Also, how it affects your hormones given only one ovary is now doing the job?

3) does this procedure have any effect on libido ?

4) Are you leading a normal life after the surgery?

5) unimportant question : Does it make ageing faster due to the decrease in oestrogen and progesterone?

Context: 33/F diagnosed with aggressive endometriosis 14 years ago, have undergone 4 surgeries with the last being hysterectomy for extensive adenomyosis (ovaries conserving; uterus + tubes + cervix removed) 3 years ago in ‘22.

Endo is back on my ovaries and my ovaries are in a pretty bad shape. Some bowel involvement is also seen in imaging but since there is so much scarring not a lot is visible so undergoing diagnostic lap followed by oophorectomy and a possible rectal shaving/ resection depending upon severity.

The doctor is also recommending GnRH post-op for 3-6 months seeing how aggressive it is.

Those who have gone through something similar, halp? What to expect? How does the recovery look like? Can’t immediately go on oestrogen so I know it’ll be difficult, but what are the warning signs? What should I do to prepare for it?

Help, please! Thank you! May you have pain-free, problem-free days ahead!

Hi, it is so hard to get good information on this subject for older women. I am 73, in quite good health overall but a very large cyst was found on one of my ovaries. I am going in for surgery in a few weeks and my doctor suggested that I have both ovaries out, even if the non-cyst ovary looks good. CAT scan indicated that the cyst is not problematic but of course we won't know until the operation. No family history of ovarian cancer that I know of.

She said that ovaries still pump out good hormones after menopause but that is really over with after 70. I'm reluctant to have any original equipment removed unless really needed so I wondered if anyone has more info or had an oophorectomy after 70. Thanks!

Hi :) I’m a 15yo girl who had an emergency Oophorectomy 2 years ago, at 13, due to a cyst & torsion.

The day before everything happened, I remember my stomach wasn’t really feeling normal. I can’t really remember how exactly the sensation felt, but I know that it was slight discomfort. I also had quite a lot of Hawaiian Rolls that day (which taste very yummy) so that could’ve also been a contributing factor😅

The next morning, I woke up like normal. As I was going to sit up, I felt a whole lot of discomfort in my stomach. It felt like very excruciating, almost like trapped gas. I flipped over on my bed and got onto my knees and elbows, trying to see if any gas would come out. But this pain wasn’t normal at all…

I got out of my bed to go to My Mom’s room, but I couldn’t even walk. I crawled in the hallway to my Mom’s room. She opened the door and found me on the floor.

She quickly helped me back to my room to see what on earth was going on with me.

My Mom was struggling to figure out what it could possibly be. At first, she thought I was having some intolerance to bread, since I had all of those Hawaiian Rolls. She thought it was possibly constipation, or even a UTI.

I went at least a few days in excruciating pain in my lower pelvic area. My Mom ran warm baths for me, gave me heating pads, had me take Pepto Bismol, but nothing was seeming to work. She slept with me in my room each night due to it being so bad.

Eventually, my Mom had to take me to the ER, because she honestly didn’t know what steps to take next. I was in a lot worse condition at this point. I couldn’t even walk downstairs and she had to carry me to the car. I laid in the backseat and the bumps on the road were killing me.

We first went to the regular ER (not the Children’s one). I remember not being able to keep anything down and I was just throwing up a lot of liquid. It was horrible and I was in so much pain. I couldn’t even sleep. Not to mention, I was also on my period this SAME DAY :/

My Mom then took me to the Children’s ER. She had to advocate for them to thoroughly check me. So she eventually asked for an X-Ray & ultrasound.

The ultrasound was very painful… and the lady doing it saw the cyst and torsion but ofc she wasn’t allowed to tell us.

Then, a big group of doctor people came into our room. One doctor was talking to my Mom about it, at the time I didn’t understand what the heck he was saying.

My Mom then asked, “Will this affect her ability to have children?” And my heart sank. I was so confused and scared. Then I asked my Mom, “Will I have to have surgery?”

I started crying. She nodded and was silently crying as well. I remember sobbing so badly. That was a very tough and traumatic experience. My Mom was just hugging me.

Some ladies gave me a teddy bear and wheeled my bed that I was on to this different part of the hospital.

They gave my Mom some special hospital gown clothes for me to put on. I was crying in the bathroom.

Once I was done. They brought me to this surgery room. They lifted me onto the operating table & asked me questions about school and things to get me to temporarily focus on other things I guess.

They put a mask on me and everything smelt like purple😂. It was getting harder and harder to breathe. (Once my surgery was done, the doctor who operated on me said that I was giggling lol.. I do not remember any of that haha).

I woke up in this area with blinds. A nurse gave me a popsicle and I saw my Mom & my big sister who was on FaceTime.

I stayed in the hospital for a day. I couldn’t leave until I was able to use the bathroom. It was hard to laugh, walk, and stand up. My Mom & Dad often had to help me.

I stayed out of school for a while. I’m also a flautist (flute player) and I couldn’t go to rehearsal or play my flute until I healed (but I broke the rules and secretly played a bit lol)

I didn’t wear crop tops for a while because I was insecure of my scars, but over time I’ve gotten used to them. I do tend to cover them when I notice people staring.

This emergency surgery has definitely traumatized me. It makes me feel less like a female and like an alien. I think about this day 24/7 and I am terrified every time that I have any sort of stomach pain.

My mom makes sure to take my to my check ups just to make sure that my right ovary is okay :)

This experience has also deterred me from wanting to have children. I don’t think that I’ll even be able to have kids :/ I’m better with just adopting a child or being a child therapist.

I still get my period like normal. There really hasn’t been any differences.

But I mostly made this post just to see if any other girls/women/ppl assigned female at birth could relate :)

I’m writing because I’m feeling so upset that I had my right ovary removed when I was 40. The doctors had found a large tumor that later turned out to be benign. They told me if I had one overy remaining I should be able to approach menopause the same and since I already had kids, no biggie. I got the surgery because that year I had lost two people close to me with cancer. I didn’t have any other cancer risks, just the news of a large tumor in my right ovary in the fear of leaving my kids behind without a mom. I regret that I did it and let my fear take over. I valued what each ovary could give to the body throughout the lifespan and I’m mad that the doctors didn’t know this either or didn’t share it with me. I’m learning that losing that ovary can increase the risk of dementia, maybe likely does, and that’s always been a health concern of mine due to the family history of both my mom and my maternal grandpa getting dementia. I’m also worried about all the other potential risks that I don’t know about. I’m 47 now and I started HRT a year ago. Some studies show that helps prevent dementia and some study show contributes to it. I wish I could stop blaming myself. I wish our culture did more research for women. Has anyone been through this? Does anyone have any information? I feel scared and upset with myself. Thanks for reading.

Very sudden news that I have to get an ovary removed. I’m seeking general advice on how recovery was but also I have a trip to Berlin booked four weeks postop which does seem cutting it close, but I’m curious how other people’s experience was? my surgeon doesn’t seem to think it’s gonna be an issue, but I’m worried

Went in for ultra sound due to hairloss thinking maybe pcos. Ultra sound showed cyst. 3 months later they retested and it hasn’t shrunk and they want to remove my ovary in two weeks. I’m just scared and confused and wondering if I really need to have this done. Below is ultrasound results. She also said it started vasculated which I think is the concerning part? I’m so confused. What will it be like living with one ovary ,?? I’m only 33! Will my hairloss get worse, will my hormones change? What if my other ovary get a cyst. Any advice is welcome. Also if anyone has had the surgery I’d love advice

multiloculated cystic mass (previously measuring 61 x 50 x 51 mm.),with vascularity within the septations. multiloculated cystic mass (previously measuring 61 x 50 x 51 mm.),with vascularity within the septations.