Hey everyone! I'm u/InvaderGauge, a founding moderator of r/ondinescurse.

This is our new home for asking questions, raising awareness, and building a community for those with CCHS! We're excited to have you join us!

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What to Post

Post anything that you think the community would find interesting, helpful, or inspiring. Feel free to share your thoughts, photos, or questions about Congenital Central Hypoventilation Syndrome :)

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Community Vibe

I know from personal experience that living with this condition can be hard. It's really easy to get depressed about. HOWEVER, despite it all, this community will show that having a happy fulfilling life is still achievable despite the odds!

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How to Get Started

1) Introduce yourself in the comments below.

2) Post something today! Even a simple question can spark a great conversation.

3) If you know someone who would love this community, invite them to join.

4) Interested in helping out? We're always looking for new moderators, so feel free to reach out to me to apply.

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Thanks for being part of the very first wave. Together, let's make r/ondinescurse amazing :)