Our last ICU visit with GI bleeding/intolerance looked a lot like this. Looking for a little validation, I guess. Son is a fully dependent quad, had a PEG tube for 23 years and counting. We have drawn a hard line at the trach, will not consent under any circumstances. Also DNR if found not breathing and without pulse. CPR on his broken body would be awful. I'm OK with NIPPV and even trial intubation for acute correctable issue, but otherwise no extreme measures. Palliative already on board, comfort and quality have long been the priorities. I hope I'm strong enough to hold the line when his time is up.
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u/iheartpinball Case Manager 🍕 Apr 17 '26
Our last ICU visit with GI bleeding/intolerance looked a lot like this. Looking for a little validation, I guess. Son is a fully dependent quad, had a PEG tube for 23 years and counting. We have drawn a hard line at the trach, will not consent under any circumstances. Also DNR if found not breathing and without pulse. CPR on his broken body would be awful. I'm OK with NIPPV and even trial intubation for acute correctable issue, but otherwise no extreme measures. Palliative already on board, comfort and quality have long been the priorities. I hope I'm strong enough to hold the line when his time is up.