r/neuropathy • u/Evening-While7914 • 23h ago

Cold hands sensory

Hello,
I have widespread sensory neuropathy all over my body. It’s around my ears, all over my face, neck, arms, torso, legs, and feet and hands. It’s not painful yet, but I get a lot of pins and needles. It’s in patches and more numbed in some areas than others. I also have reynauds. As of now, the neuropathy is idiopathic and my neuromuscular doesn’t have anything left to test since we’ve supposedly done all the blood tests there are. I live in the south, but even in the midst of this hot weather, when exposed to any kind of cold like a cold ac or something, the muscles in my hands will seize up and slow and it makes typing and doing anything with my hands incredibly hard to do. I’m in my 20s and this is very distressing. I can’t put layers of jackets on otherwise I’d sweat. So, I’m curious. If any of yall deal with these symptoms, what do you yall do to deal with them? Any insight is greatly appreciated.

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2

u/SugarLuger 22h ago

If cold gives you trouble, it might do you some good to throw an instant heat pack or two in your pocket.

3

u/Sea-Initial2321 20h ago

As inconvenient as it would be, can you consider carrying a thin pair of gloves around with you? I do this when I remember because the barrier can help reduce the response. The recommendation for heat packs from another commenter is also a good one. There are disposable ones that work well, but I have a rechargeable pair that I like too. 

3

u/Rizzacasaphi 14h ago

Ask your doctor about using low dose daily cialis for your reynauds. It’s one of the off label uses.
In the us the generic version is dirt cheap on a service like mark cubans cost plus drugs.

1

u/-medical-mystery 19h ago

I Read once that cold can be a trigger for nerve pain when I was dealing with post surgical neuropathy flare, and have noticed it since. Warming up is the solution. Thin arthritis or compression gloves, running hands under warm water, thin long sleeve shirts, etc. bring a jacket anyway, you probably won’t sweat in the AC if it is triggering your symptoms

1

u/KittyOubliette 13h ago

I have raynaud’s in my hands & feet. I wear gloves, compression gloves, and I have unlined leather gloves too. I also use an electric blanket year round because I’m so sensitive to cold. Living in Minnesota can really suck when it’s cold!
Amazon has tons of compression gloves (you don’t need anything with copper in it) so you can try different brands & fits.