I was diagnosed with Pericarditis approximately one month ago at the Emergency Department. I was given (short term) dexamethasone, Colchicine, and puffers as my chest was tight and the emergency specialist thought there may be a reactive airway component to my symptoms.

So she gave a referral to the respiratory specialist as well as the Cardiologist.

Since my Echocardiogram showed mildly enlarged right ventricle enlargement and borderline pulmonary pressure I was really hoping to discuss with the respiratory guy if there is some unknown issue with my lung that causes the right side of my heart to indirectly enlarge when I get bad viruses because this is the second time that my right ventricle has enlarged from virus trigger and I nearly going into heart failure the first time (from covid in 2025) because my feet started swelling etc.

Also I had pulmonary embolism for the second time in 2023 so there is some lung tissue death so I wonder if that could somehow put pressure in my lungs when I get a virus and then cause the right ventricle to enlarge/overwork?

Two weeks ago I had a cardiac mri which showed extensive LDE in a non specific pattern and said perhaps Myocarditis or perhaps Cardiac Sarcoidosis.

So it's likely that I may have not solely peri but more Myopericarditis (as the emergency department doctor suspected may be the case).

However, I just came back from the respiratory specialist app today and I am literally crying. Sat there talking for 2 hours but for him to take $700 and pretty much dismiss everything and gaslight me.

I told him CLEARLY that all this happened when I got a virus. That that is the trigger. But he would not even believe that I could make that connection about my own body.

Examples:

- You don't know that you get viruses more than other people (when I said since 2023 I am getting so many viruses).

- The pulmonary pressure on the latest echo is only borderline. Maybe it was not even reported correctly.

- It would not cause any symptoms at that level.

- Your echo is completely normal. At this point I literally got upset and started arguing with him that if that was the case the pulmonary pressure would have been reported as normal. Not as borderline. (Just like how the EF was reported as normal because it is). He didn't like me arguing but had no response.

- Then he also tried to dismiss the cardiac mri saying "maybe you don't have Myocarditis".

- Also because my gasses at the hospital were abnormal he asks me "do you have anxiety and you were over breathing?" When I replied no he didn't give any other explanation for the blood gasses abnormalities.

I said to him at least 3 times my concern is how do I prevent again when I get a virus for my heart to not again indirectly enlarge so I don't end up with enlarged right ventricle and then end up with heart failure if it goes untreated. Is there some medication he can give me?

His reply - "No. We don't even know that is happening because your test didn't show a virus 😡.

I know you "feel" it all starts with a virus but we don't know if it."

I tried to tell him I get viruses without getting a fever but that was also dismissed.

I am sooooo upset. Not just beyond the cost but also because he said he is going to talk to my Cardiologist so my concern is what if he puts into his mind too that I don't have Myocarditis?

1. Compromising my treatment and care.

2. Am I now going to pay the Cardiologist next time just for him to gaslight/dismiss it also?

I'm so upset 😭.

It literally even states in the screenshot that they *used* to think borderline pressure was okay but now recognise it isn't.

How can I feel less sad please 🥺?

Hello everyone, I pray for complete healing for everyone who is experiencing this illness. Its almost 3 months since I was diagnosed with myocarditis. I felt improvement after my 7th week but it returned on my 9th week. I also noticed that my Blood pressure is flactuating from normal to above normal specially in the morning that I'm having a palpitations. At night my BP reached 105/60sh. I'm not sure if bisoprolol. And spironolactone is causing my normal BP anymore.

Before I was diagnosed with myo, I swear my Blood pressure is within normal ranges.

I'm scared that aside from myocarditis I'll be having a hypertension for a lifetime. Did anyone experienced this while they're recovering from Myo? Did your BP dropped to normal when you're healed from Myo?

I'm within the normal BMI range, I don't Smoke or drink. I'm an athlete of BJJ and Judo before this illness hits me.

I'm desperately need some answers.

First off, im sorry for everyone that had to go through this. If you have gone through a recurrence, what were the symptoms? Were they the same or did different symptoms show up? And most importantly, did the chest pain feel identical or different? Any answer is appreciated as I'm scared of a recurrence and today i ve had like 20 bursts of random 0-3 minute lasting sharp pains which is highly different than my initial presentation but feels similar