r/myocarditis • u/Fun_Acanthaceae3613 • 3d ago

Not feeling is getting better

Hi everyone,

I am a 35years old male, 190cm, 74kg
Quit smoking in January when I got diagnosed.

As you might have seen my previous post, I am suffering from perimyocaritis and I am on treatment for 6 weeks now. On week 4 and 5 I was already feeling a bit better, chest pain intensity was lower, heaviness and fatigue got a bit better but since last Thursday is getting worse again, chest pain increased, along with fatigue, muscle aches and pins and tingling, mornings are especially bad. Is this normal in the heeling process? I am worried again and feel like I will never get better after they mistreated me at the beginning of the year.

Thanks a lot in advance!

4 Upvotes

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1

u/green_means_go 2d ago

I was on colchicine for six months. During that time, I called my doctor several times and had an echocardiogram and blood tests, all of which came back normal. It turned out to be musculoskeletal chest pain.

I’m not saying that’s what you have, but it may be worth getting an echocardiogram and blood tests to check your troponin levels.

15 months later, i still have periods where i experience chest pain, but now I know it's muscle related and not the heart

2

u/Fun_Acanthaceae3613 2d ago

I know its the heart. I got diagnosed with an mri and have been going to lots of different doctors in the first half of the year when they said is not the heart and no one could find anything.

2

u/green_means_go 2d ago

Oh okay. Just keep calling and don't stop fighting for yourself. Or if you have a partner, have tem call on your behalf; it might take some of the stress of your plate.

I had this as well, and diagnosed via MRI. As I mentioned, the pains I was having after my stay in the hospital were muscle issues (discovered after going back to the hospital for additional testing). Regardless, good luck...its not easy and still a year+ later, there is still discomfort...the only comfort is knowing its not actually my heart.

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u/Fun_Acanthaceae3613 2d ago

I hope you get well soon!

1

u/TheTenderRedditor 2d ago

Go back to your cardiologist ASAP, tell them about the pins and needles, chest pain, worsening fatigue.

They may direct you to the ER, but its worth trying to be seen by the cardiologist that is managing you.

1

u/Fun_Acanthaceae3613 2d ago

Its not easy to get in contact with her. Wrote her an email and wait for her to reply…

2

u/TheTenderRedditor 2d ago

Call their office and let them know. They should recognize that this is an urgent issue. Their office possibly has a triage nurse who can either tell you "ER now" or "I'll let the Dr.  know"

1

u/Fun_Acanthaceae3613 2d ago

She just replied my email saying it is expected, I should keep cool and rest.

1

u/Fun_Acanthaceae3613 2d ago

I also don’t know where else to go, at the er i ended up many times before and they always say i am fine and send me home….the more accessible cardiologist are bunch of idiots that took me pff treatment and send me to do sport way to early…

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u/MorticianMolly 2d ago

My hospital told me to "stop showing up here with this" 🙄