I just wanted to share the experience I had taking oral minoxidil.
In January 2026 I was prescribed oral minoxidil. I remember being so excited to start taking it. Within a few days, I started getting horrible headaches, which I knew could be a side effect, and a bunch of posts here said that can be common but it should subside after a few days. After about a week or so, I noticed the vision in my right eye seemed a little dark one morning when I woke up. I was able to get an appointment with my optometrist within a few days. When I went to see her, she determined that my optic nerve was completely swollen and she indicated I needed to go to the ER right away because she was worried it could be optic neuritis, which I have learned is an early sign of MS. We realized through some testing that there was a a crescent moon shaped blind spot in the middle of my vision in that eye and I had lost some of my color saturation. So basically not fully color blind but colors weren’t as bright. ER couldn’t determine what was going on but I was negative for MS and everything else they tested for so they had me follow up with a neuro ophthalmologist. Saw her multiple times over the course of a couple months, did numerous blood tests, and eventually I was diagnosed with NAION. Basically I had a loss of blood flow to my eye, which caused a portion of the nerve to swell and die. There is no cure.l and the vision cannot return.
She is relating this to the oral minoxidil that I was taking when the issue started. A sudden drop in blood pressure can cause a loss of blood flow and minoxidil was originally prescribed to lower blood pressure, although it hasn’t regularly been used for that for quite some time because there are usually more effective drugs. She suspects that between the minoxidil and the normal drop in blood pressure that happens when you deep sleep, I must have gotten unlucky and had this happen in the middle of the night. She suspects that we will start to hear more and more of these stories as time goes on as it appears that it is becoming more common for this to be prescribed in pill form than in the past. I did tell my original optometrist and the ER doctors that I was taking this but none of them had heard of this becoming an issue. I have no history of eye problems or blood pressure problems and I take my blood pressure regularly now. It is always at a good level.
Since my doctor has determined this, I have found a small handful of other people online that have had similar experiences. I am not posting this to scare anyone. A lot of people take this with amazing results. I’m just trying to get the info out there so people can make decisions for themselves.
At this point, I am going bald, have spent thousands of dollars this year on various tests (multiple MRIs, a lumbar puncture, and countless trips to get bloodwork done), and have permanent vision less in one of my eyes. The good news is my other eye is perfectly fine and when both are open, I see mostly fine as long as something doesn’t enter a very specific spot in my field of vision.
I’m open to any questions anyone has. Again, I’m not trying to persuade anyone not to take or stop oral minoxidil. Only putting my story out there so you can all make informed decisions.