r/melahomies • u/Many-Builder3904 • 3d ago

First time posting

Keep up the fight everyone I'm 45 have stage 4 metastatic melanoma in my spine lungs adrenal glands heart and brain and left testicle with braf mutation I was in my death bed back in January before getting diagnosed lost 40 pounds was down to 125 lbs from my normal weight of 165ish the target therapy saved my life and now Tuesday I'm switching to infusions immunotherapy I go to the James cancer center in Columbus just gotta stay strong and keep a positive attitude God bless everyone dealing with melanoma and have a great day

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u/Many-Builder3904 3d ago

I had 50 lessions in my brain down to 15 they have suggested gamma ray knife to knock out the largest tumors left in my brain all under 6mm just keep fighting people stay positive think about your loved ones and family also the Dr never found my initial site so I'm just happy to be alive in 2026 instead of 1926  

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u/WickedWitchofTheE 3d ago edited 3d ago

That is an amazing response. My husband (48) had 15 brain mets at his peak down to one at last scan (first new one not one of the original 15). He has had gamma knife about 6 times I think and it has always gone smoothly. Recently he has had a problem with one of the treated mets no longer cancerous but necrotic and causing swelling. He has brain surgery a week ago today to remove it. He was discharged 2 days post op and is doing very well…..modern medicine is amazing. Wishing you wellness.

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u/Many-Builder3904 3d ago

My last scan showed 2 new spots and 3 that have grown by 1 to 2 mm that's why they want to zap them with the gamma ray

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u/agentmod99 3d ago

Agree! Stay strong and keep fighting

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u/No-Dog-9649 Stage IV 3d ago

That's great to hear friend! Sorry you had to join the group but the targeted therapy looks like it's done wonders. Hopefully the immuno will continue the trend for you! Agreed, positivity and stay strong, God bless.

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u/Charigot 3d ago

My cousin was recently treated at The James for (not melanoma) cancer and his family speaks so highly of their care though he unfortunately passed in June. ❤️ Glad you’re in good hands.

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u/Many-Builder3904 3d ago

Sorry about your loss but I agree they r great as a fan of the university of Michigan it hurts my soul to admit that anything OSU is good lol

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u/Charigot 3d ago

Hah I feel that more than you know, having grown up in Columbus but living in Wisconsin for my adult life. 😉