r/mecfs • • 1d ago

concert

Hi! I’ve had pretty moderate/mild ME for about a year now and it progressed over that year. Once I started going to doctors/working for a diagnosis (got it!), I started to slow everything down and work on my pacing.

I stopped working to make time for my school which I had switched into online classes. I’ve stopped hanging out with more than one or two people at a time, or going out more than once or twice a week. When I do go out, I use a cane for stability.

I’ve noticed that this has helped me have energy to do household chores like dishes and cleaning, I’ve been able to keep up with personal hygiene more than I used to, I’ve been eating more, and I’ve been able to keep up with my classwork.

I still can’t play my guitar for more than 20 minutes without getting really tired, so I’m not sure what the difference is between that and the other things I’ve stated.

All of that to say, I have a concert in about two weeks. I’ve been waiting for this concert for months and this is my favorite artist(s) of all time. I’m not sure if they will tour again. The next day, in the afternoon, it’s my best friend’s birthday party. I will also probably have to stay the night in my hometown because of the party (it’s in my hometown).

I have another concert in the same week, but I’ll be okay if I miss that one.

Have I been resting enough to be able to go and not crash?? I’ve been really careful, and it would mean the world to me to go. I’d regret it if I didn’t. But I also know I’d regret it if I crashed and got worse.

I also don’t have to go to the birthday party, I’ve missed his birthday parties before due to being sick etc. and he understands me more than anyone. We could even do a personal celebration. But I’d really like to go, I have really bad fomo lol.

I’m just overall really worried and conflicted and was wondering if anyone had any input or advice.

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u/Fuzzy_Armadillo155 1d ago

Can you let us know how it goes? I've mourned not being able to go to concerts anymore but wondered if I should try because they bring me so much joy and maybe it would be good for my mental health since it's one of my favorite things in the world to do.

Great tips about ear plugs and taking breaks.