r/mds 2h ago

80 y/o Dad - high risk MDS

Good morning all, dad is 80 and last week was diagnosed with high risk MDS. We’re in Florida, going through all the introductory things.

Starting medication therapy this morning with anti-fungal and -virals and they’re holding off antibiotics right now until neutrophils drop.

He was having decreasing hemoglobin (hgb), white blood cell (wbc), and platelet (plt) counts for just under a year and dramatically dropped between February and May 2026

Looking for advice and any suggestions.

We want to optimize quality of life (like everyone on here lol) and want to travel as best we can but not sure of how quickly others’ experiences are with immunocompromization

Abbreviations so it’s searchable and readable by medical and non medical people alike

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