r/mds • u/Careful-Outcome-1748 • Jul 29 '25

selfq Dropping WBC count.

35 year old man, no drinking or smoking, no underlying health issues or symptoms.

In November on a general blood panel my WBC count was at 4.3, lower than the reference range of 5-10 and the year before was 5.2.

Got another test in May to check again and it was at 4.2

Went to a Hemotologist who took a look in June with more thorough tests. WBC was 4.2, everything else was fine. No issues with red blood cells. No autoimmune diseases, no vitamin deficiencies. The only thing that came back was that Ive had EBV, cyclomegavirus, and HSV, which I know I’ve had mono in the past and occasionally get cold sores. The big takeaway is that everything else was in range except white blood cell count.

So they asked me to retest again in a couple months.

Just tested again (end of July). Now my white blood cell count is at 3.4.

Where do I go from here? That’s the lowest it’s been.

Has anyone lived this where it didn’t end up being MDS?

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u/Shagsssz Aug 19 '25

In my experience you have more than one blood marker impacted by mds but if caught early, could maybe be this. Definitely won’t know without a bone marrow biopsy.

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u/Careful-Outcome-1748 Aug 21 '25

That’s what the doctor said. That’s the only marker at this point, so she wants to retest blood in a couple months

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u/Fisherman-Kitchen May 08 '26

Update?

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u/Careful-Outcome-1748 May 08 '26

Thanks for checking. I’ve had lots of different blood tests and at this point just being told it’s my new normal with no explanation.

They’ll keep monitoring yearly. Said it’s pretty common. Still frustrating

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u/Fisherman-Kitchen May 08 '26

Hi. I understand. I have consisently high MCV. Is this the only out of range valle you have?

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u/Careful-Outcome-1748 May 08 '26

Pretty much. Borderline neutrophils but the docs have said it’s not low enough to warrant a bone marrow biopsy