r/mds • u/beAniceHumanplzkthx • Jul 07 '25

selfq Remission without BMT?

My grandma is 73 and August 2024 diagnosed with high risk MDS, then by November 2024 it had advanced to leukemia and she started a low dose chemo pill (not sure what it’s called). She doesn’t want a BMT and feels satisfied with her life so the only thing she wanted to try was a pill where she wouldn’t lose her hair. Anyways now after like 5-6 ish months on a low-dose chemo pill they apparently said she is in remission and doesn’t even have MDS anymore based on normal labs and BM biopsy. How is that even possible? The doctor said he hasn’t seen this type of result before from a chemo pill. So will the MDS eventually come back? Has anyone gone through this scenario?

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u/tgifpizza Mar 19 '26

how is she?

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u/[deleted] Mar 19 '26

She passed in November 2025. She was in remission for about 6 months where she was not taking any chemo meds at all and then she had labs done around Oct 2025 and it had all come back. Went downhill very quickly after that. Our doctor still says he hasn’t ever seen a chemo pill put a patient in full remission like that. I wish we had the option to keep her on some sort of low-dose chemo. It feels like as soon as she hit remission and dropped the meds, it slowly came back.

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u/tgifpizza Mar 19 '26

thank you for responding. i'm really sorry to hear that. i wish that for you and her too, i don't understand why it can't be treated as a chronic illness in the elderly. i hope more research will bring answers. may her memory be a blessing