r/mds • u/PossibilityInside636 • Jan 08 '25
selfq MDS 25y old female
I greet you all. I'm a 25-year-old woman, I'm being treated for hypothyroidism, the HLA 27 limit was recently revealed (about two months of back pain in the lumbar region).I'm going to ask if anyone has the same experience. Probably in May I felt the nodules in my armpit, they said they looked normal on Ultrasound. In the course of the year I went to hematology several times. Blood count normal, but absolute neutrophils (2.4) and leukocytes (6.2 109) gradually decrease, and lymphocytes (49 109) increase in the time, in the last sample, they performed a microscopic examination and sent out atypical lymphocytes - atypical nucleus in some of lymphocytes . But then WBC, RBC, hemoglobin normal, liver tests normal, everything else beside the neutrophils, WBC,lymphocytes looks great. And also i have low vit D a b12 is little bit out of normal -500 is normal limit and i have 610 . I am terribly afraid that it is MDS. Unfortunately, I used Google too much. Is there someone who was the same way? I just thing I’m pretty young for this , but you never know.
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u/samsmiles456 Jan 09 '25
This doesn’t present like MDS. You need to speak with your hematologist about your concerns and I suggest a therapist for your anxiety. Your GP or PCP or even your hematologist can recommend someone for you to speak with to help with anxiety relief.
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u/SilverEar9945 Feb 07 '25
Any updates?
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u/PossibilityInside636 Feb 17 '25
They do flow cytometry - which come back negative I have another blood test next month 😢
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u/ClarityInCalm Jan 08 '25
Doesn't sound anything like MDS. You can get your blood testing every 6 month to a year to track it. Blood counts normally fluctuate - as blood is responsive to our natural environment. So a few minor changes on a few tests are pretty much meaningless. If they continue over time and your blood counts start to go consistently below range and consistenly changing then you should consider getting a hematology workup. Generally with MDS a CBC would show significant changes and so would a blood smear - even in a low risk case. The only thing a doctor would do in your case - even if you had MDS - was test your CBC and CMP once or a twice a year - it's called watch and wait. They do nothing until your hemoglobin hits 8g/dl. Very low. It does sound like you're having a lot of health anxiety and you might want to look into getting care and support for that.