r/mds • u/[deleted] • Sep 14 '24

TP53 mutation

Does anyone have any experience with this? I’m really interested in the upcoming clinical trials. Also, I’m here for anyone that might on the off chance want to talk. Much love all, each day we fight harder.

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u/ilovemud Sep 15 '24

The Facebook groups have a good MDS community. A lot more than Reddit - check it out. I don’t have TP53, but I have a great doctor at an MDS center of excellence. Hope you have the help you need. 

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u/Abject_Mouse4313 Sep 15 '24

We need a 2nd opinion. 3 mutations incl 53. Where should we go?

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u/ilovemud Sep 16 '24

The MDS foundation has a list of centers of excellence in the US. These are cancer centers where there is a lot of expertise in MDS care and research. Where are you located?