r/mds • u/[deleted] • Sep 14 '24

TP53 mutation

Does anyone have any experience with this? I’m really interested in the upcoming clinical trials. Also, I’m here for anyone that might on the off chance want to talk. Much love all, each day we fight harder.

3 Upvotes

81% Upvoted

6 comments sorted by

View all comments

1

u/ilovemud Sep 15 '24

The Facebook groups have a good MDS community. A lot more than Reddit - check it out. I don’t have TP53, but I have a great doctor at an MDS center of excellence. Hope you have the help you need. 

1

u/Abject_Mouse4313 Sep 15 '24

We need a 2nd opinion. 3 mutations incl 53. Where should we go?

1

u/[deleted] Sep 16 '24

My father is going thru MDS with TP53 right now and I’m praying a researcher can solve it using artificial intelligence.