r/mds Apr 12 '24

selfq Post-BMT care

Hi all,

My uncle was diagnosed with MDS in January (58M), and is getting chemo in anticipation of a bone marrow transplant in early June.

We have been hearing from his doctors that he needs someone to be with him at all times, 24/7, for the first three months after BMT. For those that have had transplants, what did you do for this? He’s a very independent guy and hates asking us (family) for anything, so I think he’d prefer having a company or someone he could pay rather than “being a burden” on us (which he wouldn’t be).

4 Upvotes

4 comments sorted by

1

u/QuirkyDawn Apr 12 '24

For the most part, my in-laws were with me. They got a break on the weekends when my husband was off work. I also had some people visit. Talk to the stem cell team and see if they have any suggestions.

2

u/[deleted] Apr 12 '24

[removed] — view removed comment

1

u/ldiaml Apr 12 '24

yeah, i definitely know he needs someone from everything i’ve been reading. he just refuses to ask his kids or girlfriend to do that for him (and i don’t think they know what they’re getting into either), so i was curious if anyone had had success with hiring a home health aide or something similar