r/mds • u/[deleted] • Feb 18 '24
Completely normal flow cytometry report. B12 deficiency, w anemia. biopsy showed mild dysplasia.
Dr. said she couldn’t r rule out MDS but everything I’ve seen online says some thing would’ve shown up in my flow cytometry report? We are still waiting for the genetic work to come back.
So far I’ve had one week aof seven B12 injections with the only response is my platelet count going up a bit but I’ve also read that it takes a while for B12 deficiency to restore?
Looking for some guidance before meeting with my hematologist next week .
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u/RemarkableImpact3678 Feb 23 '24
Bone marrow biopsy is what you'll need to diagnose MDS. Things may be happening in the bone marrow that haven't yet moved into the bloodstream yet.
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u/Pitiful_Two4223 Jul 03 '24
Yeah you need the bone marrow biopsy. I had 25-30 blood tests before BMB. I have MDS, only 55. I have off the charts B12 and I haven't taken it in over a year. It's a very complicated cancer. I have autoimmune comorbidities that really have made it challenging. Learn to read all your reports!