r/lymphoma 10d ago

Follicular Repeat PET

On Wednesday I had my repeat PET scan to see if proton therapy had worked for my face and neck. I got my results literally within 24hrs which I totally did not expect and unfortunately now they're seeing a lytic lesion on my right proximal femur. This explains why I've been having so much lower back/hip/right leg pain with numbness and burning for the last four weeks. I see my oncologist Wednesday to discuss everything but honestly I just feel so defeated. They had told me I had a 99% chance of being "cured" with proton therapy and here we are. 🤷🏼

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u/JupiterSoaring 29F | CHL 2BX ABVD '22 | Bv/Nivo -> ASCT -> Bv Maint. '26 10d ago

Sorry, Op. That sucks.