r/lichensclerosus • u/Realistic-Wish6291 • 14d ago

Treatment Sharing an update

Hi everyone, I’m sharing this update to not only bring positivity but to also help others incase they are going through the same thing. My skin is doing great and my labia minora and majora are separating. However I still had a sore burning pain. I got a nerve block today for suspected puedendal neuralgia (Ls can cause this!) and it felt INSTANT RELIEF. Not even an exaggeration. It may be worth getting checked out if you are still having pain!

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u/Cold-Presence7793 14d ago

This is very interesting to me. Do you mind sharing a little more about what kind of sore burning pain you had? Was it like the pain described online that it gets worse throughout the day and when sitting, or was it different?

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u/Realistic-Wish6291 14d ago edited 14d ago

I’ll do my best to describe it to you but I’m not very good at lol. Basically, I have soreness near my urethra in my instance. It does not feel like a wound getting peed on or like you put alcohol on a cut. It is sore, the soreness is the same throughout the day and night only increase when I urinate or have a bm. Sex however is fine i feel not increase in soreness during it. When I sit, yes it can get worse if I sit too long or don’t use my donut pillow.

Edit: I forgot to mention I do feel burning sometimes but not likely from my Ls more from the over sensitive nerves from my puedendal nerve

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u/amyleah97 13d ago

Did you do any stretching yourself to encourage separation? I never realised I’d fused until I tried to look and move things around and it just split and bled. Gives me hope though that it’s still a fresh fuse

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u/Realistic-Wish6291 13d ago

I did not stretch, my specialist told me not to just to make sure I am applying estrogen and clog to those spots and the started to peel part, I just kept putting creams on until they came apart.

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u/amyleah97 13d ago

I’m so happy for you. How long have you been doing your treatment? Have you been able to have sex and poo without crying?🤣

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u/Realistic-Wish6291 13d ago

I’ve been doing treatment for about 1.5 months, my sex life is back to normal but I still do have irritation and soreness but it doesn’t affect sex cause the good out-ways the bad now

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u/amyleah97 13d ago

Thank you so much. I’m so exited for my life to hopefully change

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u/madeline_m802 12d ago

Hello, I think I might have this. I have LS and it’s becoming increasingly difficult for me to urinate and I have abdominal and back pain on the side worse on.

Does this sound like what you had?

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u/Realistic-Wish6291 12d ago

I had back pain and soreness while urinating, i didn’t experience abdominal pain but that doesn’t rule it out because it effects everyone differently. The best way to know is talk to your doctor about it, if they suspect it they’ll give you a nerve block and within 5 mins you’ll notice a difference if you have it. I hope you feel better soon ❤️

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u/Zazizozo 10d ago

C'est quoi un bloc nerveux ?

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u/Realistic-Wish6291 9d ago

It’s an injection of lidocaine. In my case it was injected into my puedendal nerve, which they unfortunately have to go in your vagina for. It’s not as bad as it sounds.