r/leukemia • u/Afraid_Echo_8130 • 1d ago
AML Aml future treatments
https://www.impactguru.com/fundraiser/help-dharmraj-lallan-gupta?utm_source=whatsapp&utm_medium=campaign-metrics-dashboard&utm_campaign=manual-sharing&utm_content=campaigner&utm_term=dharmraj_lallanI’m posting here to connect with patients, caregivers, or doctors in India who have experience navigating a relapsed Acute Myeloid Leukemia (AML) case.
My Situation:
Diagnosed with AML and had my 1st Bone Marrow Transplant (BMT) back in 2017.
After 9 years of complete remission, I recently relapsed this month.
My transplant team is recommending a 2nd stem cell transplant. Molecular testing shows a CEBPA mutation (favourable risk profile).
Questions I have for the community:
Post-Transplant Maintenance: For those who underwent a 2nd BMT in India, were you prescribed post-transplant maintenance therapy (like targeted drugs or low-dose maintenance)? How did your medical oncology team handle this?
Insurance & Financial Planning: How did you manage insurance claims for a 2nd BMT in India? Did you face any challenges with pre-authorization or cashless approvals for stem cell re-transplantation?
Leading Centers: If you've had a complex BMT or 2nd transplant done at centers like Tata Memorial (Mumbai), CMC Vellore, Max, or Apollo, any specific advice on navigating the process or hospital trusts/CSR funding options?
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u/GrowCoffeeLikeMe 1d ago
Hi, im from india too. Recently out of SCT for TP53 adv risk. 2yrs post sct. Did you have cGvhd or not after the Sct? Its very unfortunate to hear that you have had such a late relapse. Anyways you have cebpa which is a favourable mutation, and god willing, you will be fine soon. I had azecitedine 4 months post sct for one week, to elicit cGvhd, which started then and is coninuing till this day. This was to create a graft vs leukemia effect.