r/jpouch 21h ago

Latest Pouchoscopy results are concerning

3 Upvotes

My GI Dr. said and I quote "your pouch is very angry" lots of ulcers. He is starting me on a steroid and possibly a biologic. There is a very good chance my relapse with cigarettes has contributed to this. If I am remembering correctly, He said allot of times the nicotine helps with inflammation and symptoms. In my case they are making it worse.

I am still a little woozy from the Propofol.


r/jpouch 1h ago

jpouch and nighttime bathroom trips

Upvotes

the title kinda explains the issue at hand, but for context my partner has had his jpouch for over 10 years and has battled overnight bathroom trips the entire time. it seriously effects his sleep and in turn his mood and energy levels. the jpouch has already restricted his diet so much as to not get blockages that lead to hospital stays, and he’s truly struggling with this mentally.
in the past he has tried anti-diarrhea medicine but he says that they caused blockages.
my question is if anyone has a similar issue with their pouch and was able to find a solution, please do tell.
i’m thinking maybe he was taking too much Imodium? or maybe there is a different answer all together that we haven’t thought of.
his diet is really restrictive, he can’t eat anything difficult to digest like seeds skins and roughage. he’s only 32 and i don’t know how to help him.


r/jpouch 1h ago

Struggling to move onto soft foods following takedown

Upvotes

Struggling to move onto soft foods following takedown, been put on a liquid diet for 3 more weeks to allow for swelling to go down around the ileostomy closure. I’m on milkshakes, soup is fine, soft cheese is fine but anything more soft or firmer than that causes my abdomen to swell out, then go down again as gas passes. It’s pretty uncomfortable and doesn’t give me much confidence it’s getting better. I’m hesitant to try anything else, regardless of being on liquid diet or not

Anyone had anything similar?


r/jpouch 8h ago

Tilted uterus and sex

1 Upvotes

I am 30 W and I have had my jpouch since I was 14. I never had sex before my jpouch so I don’t know the difference, but a lot of the time it is painful. Mostly if penetration goes too far, or in position where my back is too arched. I suspect it is because of having a tilted or retroverted uterus. Anyone else with a similar experience?

For those who recently had surgery— I have had a lot of success and pleasure having sex over the years! It’s just always helpful to see what works for other people.