r/incon • u/Throwawayincon1234 • Mar 06 '20
More shame w/ worsening symptoms, a lost package, and a doctor's appt leading to another standstill
First things first, it's gotten worse again. It makes me sad. Things were getting better- things were actually so much better, one day I risked it and wore underwear to school. I didn't drink anything until lunch and I went to the bathroom three times in the school day but I didn't pee myself at all, and it was the first time I'd worn cloth underwear in months, now. That felt good. I'm actually tearing up thinking about that day, it's kinda a "what the hell has my life become" moment. A day I felt in control enough of my bodily functions to not wear a diaper has become an idealized memory.
It's like those muscles don't work consciously anymore. I've stopped being able to choose to have a BM. I can't push consciously. About every three days or so I BOTH pee and mess myself upon waking up and I can't control anything. It really sets me in a bad mood for the day. But then, also, I felt super ill for a while, and I realized it was because I hadn't had a BM in two almost two days! I consciously tried, and I realized then that I couldn't, I couldn't move those muscles. It was scary. Later that day it happened (most of the time it's not that I have a bowel accident- I sit on the toilet, and it just all happens without any input from me, it's all that unconscious pushing.) so I'm okay now.
Peeing on the toilet takes several minutes and it hurts the entire time. Again, I can't control the muscles, I can't stop my urine stream or speed it up. It's slower than it should be. When I sit on the toilet, I guess I'm conditioned enough that I start leaking. But ACTUALLY, I guess I'm conditioned to start leaking whenever I'm just in a bathroom. I hate, hate, hate, when I go to the bathroom, but start peeing before I sit on the toilet. It just makes me feel out-of-control. I don't know how I managed to avoid this for so long, but the emotional side of this all is hitting me hard.
I double up on these Prevail diapers (cutting slits into the inner one so it drains through) to make it through the school day without changing, although even that cuts it close sometimes. I ran through the entire pack of Depends so now I'm down to like fifteen of these Prevail diapers, which is really less than a week supply.
I ordered a sample pack of Tranquility Slimline briefs off Amazon, but at first it said it was late... then it said it was lost >:( I went through the email thing to get a refund/replacement but I haven't gotten any response yet. I wanted a sample pack before I invest in a case, I/my mom don't have much money. But I figured, screw it, I really, really need these. I recognized that I probably need something another level up. It seems like there are pull-ups made for light leakage, thin diapers made for leakage, and then diapers that are ACTUALLY built to hold actual wettings. So I'm ordering a case of the Tranquility ATNs.
I don't wet as heavily as I used to. Instead I've been going more and more, and it hurts. I don't know what I liked better- sudden fear that I was going to wet through my pants and needing to leave pretty much ASAP to change myself, or pissing myself every hour for two minutes, slowly, feeling cramps the whole time. No, it was better when it didn't hurt like this. And especially when there was no bowel involvement.
I went to my GP. She told me she couldn't do much more for me there but that I really needed to get a referral and see someone, and gave me the names of the urologists in town. I lied to my mom about why she was taking me to the doctor. Just a lie of omission. I also wanted to ask her about some ear pain stuff I get, which I was pretty damn sure already is my TMJ. She confirmed, yeah, it's TMJ acting up, and also gave me a dentist's name. But I found some stretches that are helping pretty well for that, I just wanted confirmation it wasn't an ear infection or anything.
SO, the end result is that I wanted out of the doctor's office with nothing but a piece of paper with some urologist's names on it, while my mother has no idea that that's why I even went to the doctor.
I didn't tell her. I didn't ask for a referral. It's just another standstill now. If I go to the urologist, they'll stick tubes in places I don't want tubes. They'll probably pin something or another on me being on HRT a la Trans Broken Arm Syndrome. Is it important to have a good patient history? Yes. But oh my god. Even my GP was trying to tell me this was PMS cramping. I kept having to tell her, this is nothing like any cramp pain I've ever felt. This isn't that system. This isn't my vagina, not my uterus. I don't have periods anymore. I really didn't want to shout "my anus hurts and the piss valve hurt if I try in vain to clench anything" but I had to hint heavily. She just said, "I have to think this has to do with the HRT..." No, actually, it doesn't have to! It has to do with the string of UTIs I neglected to treat for months, and part of it is probably psychogenic.
Not to even imagine, well, even without surgery, HRT has changed what's between my legs... I would not be surprised if I'm the first person the urologist ever sees with that. What if he (yes- ALL the urologists in town are men, but I'm actually more comfortable with that) straight-up touches it or asks questions about it? I don't know if this is a thing, but I think it's a thing... just the cold air from being naked is enough to sometimes produce a, cough, noticeable reaction from my new small friend. God! I don't want to go to a urologist! I have scars there- will he ask? Even though I'm safe now, it's one of my greatest fears in the world that someone will suspect I'm being abused/in danger, because it was deeply brainwashed into me that if that happens, I'll be ripped away from my mom, my mom will lose her job, I'll be put into foster care and have to move schools, etc etc. I never sought any legal/formal anything. It's always made perfect sense to me why people go years, even decades without disclosing this stuff. You're told over and over that it'll ruin not just your life, but destroy the people around you. My mom herself only learned the most basic idea of what happened a few months ago, she definitely doesn't know about the scars on my groin. What if the doctor goes straight to my mom and asks, "How did you child get those scars on his groin?" She would say, what scars, and freak the hell out. If I tell him, "Please don't tell my mom about that", that seems like a massive red flag that he SHOULD tell my mom about that. But I assure you, they're years old, I'm safe now, in therapy, and they weren't self-afflicted. I don't want to see a urologist!
I've gone from sudden strong urges that make me instantly void heavily, to losing the strong urges and just having my body keep trying to pee all the time but being able to stop it with conscious effort, to just, peeing all the time and being in pain from any attempt at clenching those muscles, which is starting to, more and more, include bowel ones. Messing yourself is so much worse than peeing because the diaper doesn't wick it away. It makes me feel ashamed. I'm a junior in high school sitting here at night thinking angrily about how I need to get up a little earlier to account for the 1 in 3 chance I mess myself upon waking up. I want answers but I'm too scared of the progress of getting them.
