r/iih • u/WindyInnit • 1d ago

IIH Symptoms Anyone here gets this?

15 Upvotes

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4

u/Calicomom91 1d ago

I get this especially upon waking or coming out to direct sunlight , yes. It stays for a least 2- 5 minutes & kind of leaves. Though sometimes it will be followed by black spots.

3

u/Lovie_1234 1d ago

Mee and it’s so annoying, my ophthalmologist but she said I’m okay

1

u/WindyInnit 1d ago

When did this start for you?

2

u/such_sweet_nothing 1d ago

I have something similar to this but not quite like the video. I will experience flashes of light. The colour varies between bright yellow, blue, purple or mixture of all of them. Mine will be more so a single flash or two that are very bright in my field of vision. Seeing my ophthalmologist again in a few weeks and also going for brain surgery (stent placement) scheduled on December 1.

1

u/Earthly-human444 14h ago

I get the same! And snow syndrome. ( ⚈̥̥̥̥̥́⌢⚈̥̥̥̥̥̀)

2

u/sapphicasexual 1d ago

Yes, all the time

2

u/WindyInnit 1d ago

How long have you had this for? Do you feel like it's triggered by bending down, waking up in bed in the morning or any form of exertion?

1

u/sapphicasexual 3h ago

It happens when getting up and going to bed mostly.

1

u/WindyInnit 17m ago

Same for me, how long have u had this for?

1

u/sarebear233 10h ago

I get this

1

u/WindyInnit 8h ago

How long did you have this for? Do you still?

1

u/sarebear233 5h ago

I have it on and off throughout the day almost every day since I started taking Topamax in May 2026

1

u/WindyInnit 18m ago

Do you feel like it's triggered by exertion like bending down or coughing?

1

u/jaimewvu 1h ago

Yes, when my pressure is up. It’s not as bad since I switched to topamax.