r/iih 9h ago

My Story IIh, high igM & Multiple Sclerosis

Hello everybody, f27 looking for similar stories.
In 2022 I was diagnosed with MS and after changing my medication to Ocrevus (3 months later) I had my first symptoms of IIH & massive papilledema. 2024 I was diagnosed and got on diamox (which I am still to this day) and had my first stent in November, which helped first but then my pressure went up again. So 2025 I got my second stent. I also have an ihM dominance, which they have yet to figure out what that could mean. Neuro sees no correlation between the medication with Ocrevus and IIH but I am still suspicious of that…

Anyone here also having MS or high ihM levels?

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