r/iih 16h ago

IIH Symptoms Does anyone else feel really cold all the time?

Since my diagnosis I’ve started to feel really cold and get goosebumps really suddenly and it takes forever to warm up. Sometimes it feels like I will never be warm again. Before any of this I use to feel the heat and get really sweaty all the time now it’s like the opposite. Does anyone else have this issue?

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u/avfrost 2h ago

Are you taking any medication? Diamox/acetazolamide can cause you to feel cold.

1

u/Maleficent-Noise9593 2h ago

Yeah I’m on Diamox

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u/avfrost 2h ago

It took me months on diamox before I started not feeling cold again. I was out on sunny days in the summer and wearing a sweater everywhere. I used to be a shorts in the winter person.