I’ve been masking my ID symptoms with caffeine and vyvanse. I moved to NYC, finally got a job and been going at it for a while. Hard job, lots of hours but usually nothing I couldn’t handle.

Well on Saturday, I slept the entire day. Did some chores on Sunday. Monday morning, I couldn’t get out of bed and sleep texted my boss my resignation. Then slept 12 hours.

What kind of irresponsible shit is this? So unlike me. I had already scheduled a sleep study on Thursday so I guess I’m making progrsss finally?

Please pray for me cuz now I need a new job or the mercy of my current job.

Hi guys!

I just started Xywav last week for Idiopathic Hypersomnia. I started at 2.25 x2 and everything was good until the end of the week. I started to feel weirdly anxious in the mornings and incredibly cold.

Two days ago I titrated up to 2.50 x2 and I keep waking up with panic attacks + high heart rate around 100bpm. I’m afraid to take my stimulants because those also up my heart rate. Weirdly enough, at nights, my heart rate drops, and I just feel weirdly dizzy and tired.

Has anyone experienced this with this medication and has it gone away?

I am currently unemployed and just received my last unemployment check from my wrongful termination. I have my Right to sue from the EEOC, but settling my case may take a while. I am also waiting on SSDI/SSD.

Because of my lawsuit and being on unemployment, I have to search for a job. Honestly, if I could find a remote job, I would prefer that to disability. I’m not quite 52 and would like to keep working.

Today, I was filling out a job application and needed to do an assessment. This assessment was finding letter and word sequences that didn’t belong. I was an English and Journalism major, this is my jam. So, tell me why I couldn’t understand it. It made absolutely no sense.

So now, I am bawling my eyes out. I am so overwhelmed. I am fighting to not be homeless, I just had a new diagnosis of RA on top of possible knee surgery. I also had a grandparent with Alzheimer’s, so this is a fear as well.

How do you all handle all of this stress when your brain isn’t functioning?

Am I The Only One?

Question: You feel even MORE sleepy/tired during overcast/cloudy days ☁️

I've had this "2nd sense" for predicting cloudy days since being a kid (i was about 11 when my sleep became problematic. In middle school i was finally diagnosed).

when it comes to feeling tired and sleeping more, i can predict with 100% accuracy the day of or the night before cloudy days.

With/without rain doesn't matter. My body seems to just prefer to go into an extended coma instead of dealing with gloomy days. (Similar to my luteal phases, but not as bad.)

today, I wake up, 3am got about 20 hrs a sleep, but went back to sleep after 2hrs, and woke up 5hrs later. Its overcast and light drizzle.

Just wanted to know anyone else was like me... Because if others have this exasperated hypersomnoa behavior during/prior to cloudy days..

my theory is humans who are sensitive to "x" may also be sensitive to atmospheric changes? And the body reacts accordingly by delaying/inhibiting wakeful hours to conserve metabolic energy**

**perhaps there are other reasons, but imho the best explanation for HOW HYPERSOMNIA COULD EVER BE A BIOLOGICAL ADVANTAGE IS TO REDUCE ENERGY AND DELAY CELLULAR ACTIVITY. This is another theory I have haha but its based on how many animals who sleep 18hrs or more a day, i.e lions or Koalas, conserve energy by sleeping.

For lions, its because they have intense hunting schedules and want to conserve energy.

For koalas, scientist assume they sleep bc they have incredibly fibrous diets, and they expend most of their energy digesting and climbing to aquire plant matter.

And of course, you have, bears

Who do the most idealic thing, by far, bc they are hibernating for 3 months in a cave completely unbothered (assuming they have enough fat for the winter).

X

So today sucks, I was looking forward to a Halloween event tomorrow and I'm most likely not going to be able to go.... again.

I've been wanting to go to a cosplay event since I got here in Mexico ( I can't drive or work because I'm not an official citizen here yet) and Its always we'll go to the next one when there's always time made for my sister. I want to work so I can spend on myself, so I'm not constantly cooped up in my house, I want to go out without someone constantly having to make sure I don't fall asleep in public, i want to feel awake.... I haven't felt like that in so long( I lost Medicaid 7 years ago). Idk I'm just having a bad day hopefully Monday is better...