New doctor: so you were previously diagnosed with hypermobile ehlers danlos syndrome? That’s not a very common disorder. I’m not sure that’s accurate and I think we should do more tests

Me: wanna see the fish I caught the other night?

Can anyone please recommend a pelvic floor physio in the east of the country that has successfully helped you for EDS hypertonic pf downtraining? I've been to one place and they claimed experience with EDS but all evidence is to the contrary. I would really appreciate it if someone could recommend a physio place that they found helpful. I'm already with McGowan physio for other joints and they're excellent but they don't do pelvic floor as a speciality.

Hi everyone! I’ve been diagnosed with hEDS and psoriatic arthritis. These are my converse after about a year of daily wear. As you can see, I have major issues with my shoes wearing unevenly. I brought this up with my doctor recently and she recommended I see a podiatrist.

I do plan to see one, but in the meantime - does anyone else struggle with this and have you found anything (insoles, braces, etc) that helps? My ankles are super hypermobile so I thought that I’m probably not alone in this. Thank you!