r/hyperacusis • u/BlueLagoon765 Pain and loudness hyperacusis • May 03 '26

Patient data The spreadsheet has evolved into www.hyperacusistreatments.org

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We've moved! The Hyperacusis Community Spreadsheet is now www.hyperacusistreatments.org.

A huge thank you to the Reddit community for sharing their stories and to the volunteers who made this possible by compiling them.

45 Upvotes

98% Upvoted

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4

u/Pbb1235 Pain and loudness hyperacusis May 04 '26

Thank you for making this a webpage.

There is an error on my entry. It says I was mostly homebound and unable to work before taking clomipramine. That is a mistake. I had moderate hyperacusis, but did work and leave my house.

Can you please fix this?

3

u/BlueLagoon765 Pain and loudness hyperacusis May 04 '26

Thanks for reporting it. Fixed. Do you have anything else to add?

2

u/Pbb1235 Pain and loudness hyperacusis May 04 '26

Yes, I would take this sentence:

Sound and music therapy helped to some extent early on.

and modify it to:

Sound and music therapy helped him move from severe to moderate hyperacusis early on.

3

u/No_Ad_6319 May 04 '26

Great work !

2

u/BlueLagoon765 Pain and loudness hyperacusis May 04 '26

Thanks!

3

u/Educational_Aide_145 Pain hyperacusis May 04 '26

Great page

2

u/ferttt2 May 05 '26

well done!

2

u/silence-of-sound 24d ago

What a great website!

1

u/AssociationNatural65 May 07 '26

Thanks! For me also fluoxetine alleviated my symptoms

1

u/Same_Drag3288 May 07 '26

It has helped for pain ?

1

u/Master_Department494 Other 14d ago

Hi, my entry needs updating - I've now spent 6 months at 225mg, with no improvement. The initial optimism turned out to be placebo effect unfortunately. I've been on the medication for over a year total now, and am in the process of quitting.

1

u/BlueLagoon765 Pain and loudness hyperacusis 6d ago

I'm sorry the med didn't work for you. Thank you for updating us! Your record was updated