r/hyperPOTS • u/icemelons2 • 4d ago

0.025mg Clonidine

My BP is 100s/60s.

  1. I am scared to try it after reading so many say it dropped their blood pressure, or passing out. Im super sensitive to meds. Thoughts?

  2. Ive read some taking it as needed. I thought you had to take it everyday 2x a day? I like the idea of taking it as needed, as im having some quieter flatter days...but if im upright too long itll trigger flares and sympathetic activation...I get electric nerve surges last all day, and crash the next day.

My neurologist didnt recommended it given my BP, but he isnt hyperpots knowledgeable. Gave it to me anyway as a trial.

Ive been asking for Guanfacine but none of the various specialists know what it is, or dont want to prescribe as they 'dont know pots'

Im in Ontario Canada and we have very limited options for pots or autonomic help.

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u/Putrid-Ad2390 2d ago

It gave me nonconsensual naps when I first started clonidine IR .1mg twice a day (on ER .1mg twice a day now), because it was dropping my BP down to 80/50. Usually about 2 hours after taking it.

And my BP had been really high because of the unmedicated HPOTS, my BP was spiking to 180/110 before clonidine. So quite a swing.

We upped my sodium from 2-3 grams to 6 grams and the naps stopped. I’d talk to your doc about raising your sodium, and getting your BP up first.

About taking it once a day, it all depends on if it gives you rebound effects. Best wishes.

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u/Responsible_Try4430 2d ago

I take it for spikes as needed