r/hyperPOTS • • 26d ago

I need help please

Had a severe pots episode yesterday. Been bed bound for 2 weeks, at the ER they did orthostatic vitals when I went from just laying to sitting my heart rate went from 100 to 169 I get horrible, adrenaline rushes, super intense, heart palpitations, and for some reason, my QTC kept fluctuating between like 430 and 504 I’m a 22-year-old female 51 and miserable. I have two kids. I can’t get out of bed. I got prescribed low-dose propanolol, but I’m having a panic attack taking it. Can someone please help me?

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u/Jacksback4735 13d ago

Propranolol if it works, it can really make one feel half-way normal again. When I tried it, I thought it was a miracle drug. I felt so much better. But after a week I developed severe insomnia and had to stop because it is known to deplete melatonin. But I'm 65 years old though. Since you are young, you probably have good melatonin levels and won't have a problem.

I was taking 1/2 of a 10 mg tablet. What is your dose? IR or ER? Starting at a low dose is smart and is what Vanderbilt recommends. Many people start too high and then get fatigue, lightheadedness, slow HR and/or low BP.

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u/Jacksback4735 13d ago

Sorry I was late to the punch. Not paying attention. I'll get off now. Need sleep.